We are a community dedicated to supporting those with Lipoedema, which is an inherited disease that makes...Read more
Meat trouble Lipedema in my legs
nakhtar10 days ago
When I eat fish any type meat why my legs swell and water retention next day and end of the day plz help
Be the first to reply
I cannot decide if I am angry or heart broken.
ladyofcastile12 days ago
Throughout my life I have been abused, patronized and judged for being "fat". I couldn't understand my body. Neither my mother who tormented...
4 Replies1 Like
Danniaddison12312 days ago
I need help. For years and years I have suffered with painful heavy aching legs, I also bruise like a peach by just the simplest...
Not sure I belong...no diagnosis 😕
laurasmith14 days ago
Hi. I am new to this forum. I don’t even know if I belong here to be honest but I’ve read so much about lipedema and lymphadeno that I feel ...
6 Replies1 Like
PROBLEMS WALKING - GAIT, SPEED, LACK OF ENDURANCE
MARILYNFJ17 days ago
I have been dealing with lymphedema for at least ten years. Went from therapist to therapist for years. Finally found a really great one. La...
Sbluebama month ago
Hi Everyone ,
Does anyone have any good information about Lipo ?
If you get Lipo does it get rid of this awful disease ?
Has anyone ever had f...
Water retention/ lipdema
nakhtara month ago
Hi everyone plz do regular exercise and strengthen exercise drink at least 2 litter water go to spa and don’t feel ashamed
People who In Gym...
llynneya month ago
hi everyone what are your thoughts on hand massagers i am thinking of buying one to try with the idea of massaging my thighs and also my arm...
Hi I’m a newcomer to the site!
Suuza month agoPOPULAR
I’ve just recently even informed I have both lipoedema and lymphodema ( spelling may be wrong) any advice appreciated! Thanks
21 Replies2 Likes
Helenbolland2 months ago
How can I get diagnosed? I believe I have the symptoms but my GP has never heard of lipoedema and just dismisses me. I live in Scotland.
SoSad453 months ago
Thankyou to all who commented on my last post for your helpful and positive comments. I have now had my blood test which as expected didn't...
1 Reply6 Likes
Fatleg14 months ago
Has anyone ever noticed that when rain comes there legs burn and sting and get very red
I have noticed this happening for sometime wonderin...
Lipeodema! Why me???
SoSad454 months ago
Hi all, I'm new on here and this is my first time of posting. I'm 45 years old and have since a teenager wondered why I look so different a...
12 Replies5 Likes
Lipodema and thyroid disorders
Mai394 months ago
Hi everybody. I am new to this group, didn't know you existed until I saw a story on Facebook about lipodema. I've just seen a message from ...
Leaking burning leg
Hi I am still learning wondering if anyone has this problem - my right legs leaks from the ankle area like a waterfall it was swollen then w...
Struggling to find a clinic - Berkshire
LaurenBurbidge4 months ago
My GP diagnosed me and referred to a specialist lymphoedema clinic in oxford. It's not that but the consultant said it could be lypoedema ba...
my wedding outfit
jaberwocky5 months ago
I am getting married in 5 weeks time, I am 68, typical lipo build , my upper arms, hips and legs are huge, ugly sausages so trying to buy a ...
Great news at last
Barbaraella1005 months ago
I have today been diagnosied with Lipoedema/lymphodema in my legs and arms. The treatment is going to be long. It's taken a long time to go...
2 Replies3 Likes
Thank goodness for google
Hi everyone. I have found a Lipoedema nurse near me in Welwyn Garden City and I am going to see her at 3pm this afternoon. I also saw a diff...
Good day folks. As I told you last week that I was going to see my consultant. Well this is what he said. You had a Lipoedema test in April ...
Gp's and Lipoedema
Barbaraella215 months ago
Hi everyone. I am almost sure I have Lipoedema just waiting to to get referred. I am 69yrs next week and have had to live with this conditi...
Loramay5 months ago
Hi what do you use to stop your inner thighs from chaffing and getting sore when you wear a skirt. I can't wear tights as I am allergic to t...
New to site
Cotjan5 months ago
Like everybody it seems I have had lipoedema for years and just struggled
I also went to my Gp who had a junior Gp with him at the time so ...
oli9585 months ago
Hi, i am new here, OMG this is somthing!
deanna19686 months ago
Hi I am new on here, I am 48 and just been diagnosed with lipoedema. I am at stage 3 and I have had this all of my adult life without any kn...
Loramay6 months ago
Hi I wear the compreboot compression wraps as far as my upper calfs. I do have them for right up to the top of my thigh but as i have osteo...
lipoedema.new here. any advice
abdabs31006 months ago
hello,, I'm new here.. for years my legs have been increasing In size. I never thought much of it until I watched a programme that had a 21y...
5 Replies1 Like
Is this lipodema ?
Joanneconnor6 months ago
Hi I'm new, does this look like stage 1 Lipodema, my doc says its muscle at the bottom of my calf near my Achilles' tendon, I know there is ...
11 Replies2 Likes
Doctors in the uk or Europe
Avbreen7 months ago
Wondering if there is a list of recommended doctors who perform the tumescent liposuction in the UK or Europe that people have used a...
Tree trunk legs and arms
Barbaraella1007 months ago
I know exactly how you feel. I just found out that it is called Lipoedema and it keeps all the fat cells and the body cannot get rid of it d...
How long did it take you to get a Lipoedema diagnosis?
Start a Community