I came across this interesting video from a young lady with lupus. She talks about how people need to be more aware of people who may have "invisible" illnesses, and how we should broaden the definition of "healthy". Not every has the energy to go to the gym in the new year!
bbc.co.uk/news/av/health-47...
Does what she say resonate with you? I thought it was very thought provoking.
Happy Monday everyone 
Certainly does resonate CharlotteLCare.
I have CML and am going through a tough patch at the moment after having my imatinib dosage increased to improve my level of response.
No outward signs of illness but feeling very tired most of the time. Also experiencing aching bones and joints a lot more, again not outwardly visible.
It’s a difficult one for others to spot because there are no outward signs of cancer that they might recognise.
Charlotte, great video by Jameisha she makes such valid points and it could certainly educate those with or without the conditions. Yes, healthy has a much broadened definition now and I think it is not a competition it is just me as a unique, special person and I just try to make healthy steps, however little, when I can. However I do feel some fresh air, a walk, however short, and interactions with people really help me. I am eating a ratio of more veg now but I also believe in the odd treat.
Thanks for sharing this CharlotteLCare, yes, thought provoking. Invisible illness, what goes on inside can be so different to what people see outside. I have always struggled with the term 'new normal', with blood cancer you may have to adjust to constant symptoms and developing issues, a 'new normal'. All to easy to forget yourself, and for others to forget, that you are coping but not really functioning properly. The perception of wellness and coping seems to be an evolving and constant process that happens internally. At a subconscious level I keep making minor adjustments to cope with with increasing or transient symptoms the 'new normal'. Interesting when the doc asks how are you feeling? You may answer, 'fine', but in reality you are fine by the standards of the 'new normal' of that day.
Important not to forget you may need to keep adjusting the ways that you cope.
Nick
Really interesting video and did resonate with me and friends I have with other chronic illnesses. Defining what is healthy was also good to hear, particularly around mental health. In the office where I work I am surrounded by people who are obsessed with their physical fitness - they are all competing in various triathlons, marathons, etc and I frequently feel like a freak as all I do is walking and meditation and I don't work out or run every day. But underlying it although they are physically very fit they all have other things that they are struggling with in their lives. I think what I'm trying to say is it's best to never judge anyone on their outward appearances or when they say they are fine.
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