Need a little help please.
I was diagnosed with CML late August heard nothing until appointment letter last week, thanks to my GP enquiring on my behalf. Think they put me on a watch and wait. But saying that without further blood tests how do they know what I need?
I’m wondering what I should be asking the haematologist.
Should I know anything about my wb count? If so what should I be looking for?
Should I be pushing for treatment or wait?
Should I ask about possible medical conditions like fatigue?
Things I should be doing myself?
I rarely see a GP, I’m a “I’ll get over it guy” but recent events have been different. My GP has put me on 5mg folic acid tablets because of a low red cell count, this has made a huge difference to painful toes and feeling tired. So waiting maybe a good option instead of treating my CML. Not that it will go away.
I’m going on my own, I was going to ask my mother to join me but she has health problems of her own so I am reluctant to drag her 100 miles just for a consolation. I have a memory of a goldfish so I will be writing stuff down but I don’t want to look an idiot either. I’ll keep that to here for now.
I know medical questions can’t be answered with any firm answers here, but a general guide will help.
Thanks for reading even if you can’t help.
Still Kicking and Screaming. X