My husband is 54 years old and was diagnosed with CLL in 2010...... he was treated for Rosacea for 2 years prior to being diagnosed with CLL ......
The rash changes from resembling Rosacea to resembling Lupus....... when the CLL diagnosis was made the plan was to watch and wait because he was extremely healthy except for some swollen lymph nodes and the rash...... the rash got better but never went completely away.... a year passed and due to chronic infections he had 4 treatments of Rituxan and treanda (not sure if spelled correctly) for about a year he was relatively healthy but lymph nodes got out of control and Drs decided to do 30 treatments of Radiation...... almost killed him.... he lost 40lbs
The Radiation was on his neck and also tonsils...... so his tastebuds, teeth, smell, all was affected.......
To make a 10 year story short...... he has a debilitating skin issue..... has been this way for 10 years but has taken on an entirely new look as of late.....
He has had biopsy’s sent all over the US and the have come back with everything from a big bite to a rare form of lymphoma...... that only 5 people had ever been diagnosed with......
The rash is mainly on his head face neck ..... huge raised modules that ooze and drip clear liquid.....
Not a place on his head face neck that you can touch that is not affected.......
We own a poultry farm and that is how we make our living...... so all the bacteria he is around on a daily basis has cause severe infections......
He has gone to new Hospital and Dr this week ......
They are puzzled but searching for an answer......
My question is do any of you have the rash so severe.....
Open wounds...... oozing and dripping ...... swollen eyes and face ...... and the unbearable itching....
We are desperate to find some relief for him.....
if anyone has any suggestions please share!!
