I have hashimoto's, pcos syndrome,ME and Fibromyalgia and live in constant pain, I am very sensitive to all meds and in last two years I have developed a sensitivity to paracetamol and my thyroid meds and the only brand of liothyronine I can tolerate the consultant is refusing to add on the hospitals medicines list, so I am in desperate need of pain relief as now iam on herbal pills but still suffering all my other symptoms I am only 32 and have to work full time very long hours in a physically demanding job so I am at my wit's end, the GP referred me to a pain doctor who was ridiculous he refused to give me ldn and said even if I was knowledgeable I would not give it you! I suggest you try mindfulness 2-3 times 20 minutes a day?? Now we're am I gonna find the head space or time to fit that in and all he said was change your lifestyle !?!?! So I would be very grateful if anyone in the UK knows a knowledgeable consultant or doctor I can get a referral too for a second opinion.....
Is there anyone in the UK that is under... - LDN Research Trust
Is there anyone in the UK that is under a knowledgeable doctor / consultant who prescribes them low dose naltroxene?
Hi, look up Dr Amolak Bansal at St Anthony’s (private) hospital in Cheam, Surrey. He is an immunologist, respected in the ME world and a proponent of LDN so might prescribe it for you after a consultation? Good luck
Thanks IL research him it's so sad we have to go private if we can afford as I can't afford to go private at the moment, everyone should be getting the same treatment it's awful the NHS aren't knowledgeable in this area as they are keeping so many people sick
Hi, I managed to persuade my GP to privately prescribe me LDN for Hashi's which I have been taking for over 2 years. It has helped my general symptoms although my antibodies are still there and fluctuate. I used the info sheets from the LDN Research Trust to persuade him, although luckily I knew he had links with the local Multiple Sclerosis centre and it turned out he had prescribed LDN before. I guess I got lucky with my GP! It doesn't cost too much and is cheaper than many vitamins or supplements that may work to boost your immunity. Good luck x
Thanks for reply sounds like you got lucky! My doctor has no clue about it being used for fibro and ME did it help with reducing pain? as that's what I wanted it to reduce and my brain fog as I can't take paracetamol. But not sure I'll have to look for a private doctor or specialist as I even got referred to pain doctor and he was rude and awful so didn't give me much hope.
Hi might want to check out a couple of links before going to the expensive of hunting down a consultant.
WWW.drmyhill.co.uk. She is an endo and the top ME consultant in the country. Also she’s written 15 books on diet diabetes sleep ME etc.
On her home page in the top right hand corner, if you type in orchestra it brings up the best article I have ever read on achieving great health.
Sadly she is full at the moment. Last month she took on correspondence only patients to test their mitochondrial function.
Again you can search for this in the tool bar.
All her web pages have been written so everyone can benefit without the need to see someone. I am lucky I know her and her results have been amazing. When she set up her clinic as I recall only 30% of people were able to work comfortably. Now it circa 85%. Obviously some patients are retired so the total percentage would be even higher.
To recap on what she says. The most important things in this order are diet
Vitamins / minerals being optional ( and she tests for more then just the basic 4.) She tests red cell magnesium which for me was of massive benefit as mine was very low and I had awful night cramps. Now I have injections.
Absorption
Then thyroid and adrenal function together with sleep issues.
She does insist on gluten sugar and dairy free diets. ( again there is a section on diet).
Once everything is spot on many people recover fully. Some people, especially if they have been undiagnosed for too long, may still need help with say pain.
Ldn is worth considering. I have mine prescribed following a second very serious condition. However you can be medically screened through Dicksons the Chemists ( who supply the drug) or E Med.
Dr Mercola has commented on an article by a Dr Cowan. It’s under articles.mercola.com. They too insist on a dairy and gluten free diet and inform you to eat as many different vegetables as you can together with fermented foods.
Best wishes
Thanks so much for link it's really informative I have lots of books too but mainly American based
My issues I quite complex I have diagnosis of fibro, cfs/me, hashimoto's thyroiditis, pcos, I Def think I have adrenal issues that are severe as I can't put any weight on only 46kg and estrogen dominance and insulin resistance I also have started to develop mast cell and histamine issues in last year and it's getting worse I can barely eat many foods, I am very sensitive to alot of medications and have cut out dairy, gluten, soy, and other food sensitivities though I am addicted to chocolate to prop me up and keep me emotional up as iam still dragging my self to work full time and iav been suffering 12 years now all of my 20s so it's been very hard struggle.
I was reading about the pk diet but not sure I'll be able to tolerate the foods as I need to eat low histamine, what diet did you find useful?
Also read Dr rind link that was really good too there is lots of excellent info for people to help the self heal though I find it a little overwhelming trying to do it all my self iav found a holistic therapist that deals with mast cell issues so going to see if it can help and address as many issues as I can using the links on Dr myhills site and Dr rind
How did you get Lnd prescribe as I just wanted it as a quick fix as iam in alot of pain the wakes me in the night which is causing me to feel really ill when I have to go work next day and I have a physically demanding job and I work a 9 HR day. So thought ldn would help just take the edge of things and maybe help relieve my brain fog, pain and fatigue while I look into all the links,
Did you do anything that you could say had a massive improvement in a matter of days/weeks ?
Hi
Everything I’ve done ive fixed one by one. So that takes time. I’d say I have all but the last issues you have plus I’ve had a life threatening illness.
So no there is no quick fix. I started with my diet and after the worse illness had to adjust it so I’ve cut out the timing of certain food and I too have to be careful with histamine foods.
I won’t say I never eat say a piece of chocolate but it’s rare as I feel awful later so there really is not much point.
Then I tackled absorbtion which was a massive issue. The comprehensive stool analysis result was even worse than I’d expected. I knew I’d an issue but not that I had 0 stomach acid 0 probiotics and candida. I eat no sugar and v little fruit. The first things were easy to fix. Candida difficult. My specialist ended up giving me flucozanole to kill most of it off.( I’d tried do many natural things)
My vitamins / minerals were either fine or I had addressed them earlier. I have daily magnesium sulphate injections and b12 injections too.
Then I tested the adrenals - v high cortisol and nil dhea. High anything is not easy but the adaptagens help.
At the same time I’d swapped to ndt which was better for me.
As to oestrogen dominance it does not really exist. My levels had rarely changed since I wa 16. Normally progesterone reduces first with age first then oestrogen. Is that what you mean about a dominance? The levels only go so high on the test. It’s not like say t4 where you could go to 75 if you were v overmedicated.
Ldn
It’s v useful but I only took it following the second illness, from which I nearly died.
I have it on prescription but you can be screened out f you’ve no consultant. I’d not bother asking my gp for anything they are pretty useless.
The article by Dr Mercola is a good read. Articles.mercola.com. He reinforces the diet changes first. It’s not to be taken with any absorbtion issues.
I was as sure as I could be that evething else ( oh except my d3 is low but after 3 years now just in range) was as good as I could get it.
If you go for a quick fix it’s only a cover up. I really understand how working full time with an illness is a nightmare. My t3 was nil for years. The pain was awful in my muscles.
So really no there is no speedy way. It’s better to do things one at a time so you can see the wood from the trees. But diet is key. Sorry no chocolate yet. You need to be in ketosis as much as possible.
It’s not hard to alter. Yes you’ve got to adjust if say the histamine in chicken bothers you. I never eat it as much and never later on. Turkey is fine for me. Also contains l tryptophan lol.
I hope this helps but feel free to message me privately.
Kind regards.
I think you should use an antidepressant. LDN can be very effective for chronic pain and is a mild antidepressant. I have over 200 chronic pain patients in Dublin on LDN. I was involved in a Norwegian TV film 6 years ago and now 70% of GPs there have prescribed LDN. It is on the American website lowdosenaltrexone.org
Thanks IAm confused do u mean use lnd as an antidepressant as iam really sensitive to meds iav had some awful reactions and have tried antidepressants before and haven't been able to tolerate the ones iav tried and iav developed an allergy to paracetamol so I don't want to try just any anti depressants I just wanted to try ldn as iav researched it and it has really good reviews for reducing fatigue, brain fog and pain and these are my main issues I struggle to tolerate on a daily basis but the GP won't prescribe or doesn't have a clue who to refer me to about getting Lnd prescribed.
Looks like LDN is still a possibility for you. If you are willing to take a chance contact Dicksons Pharmacy in Glascow who will recommend a doctor on the phone.. You yourself will have to take a risk.
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