Tired of illness

[Asmithla]

I am 37. I recently was diagnosed with undifferentiated Connective tissue disease, fibromyalgia and Hashimotos. I am really struggling as of late. I am hearing amazing things about LDN and have it as a suggested treatment from my visit in Dec from the Mayo Clinic but none of the local Rheumatologist will provide it for me. I am constantly missing work because I can't push myself anymore. I feel like everyone in my life is suffering. I am just really feeling defeated lately. Any suggestions on how to find the right doctor and how to approach your workplace about modification of your job duties when you are incapable?

[butterflyEi]

Hi Asmithla

I am in the UK and know nothing of your system but if you have an HR department perhaps they can help you. In the meantime I have put a link from the LDN Research Trust which shows a list of doctors - maybe one is near enough to you.

ldnresearchtrust.org/doctors

There is also a group of face book that you may like to investigate

facebook.com/groups/LDNRT/

hope this has been of some help to you.

[Ktltel]

Asmithla,

I'm sorry to hear of everything your going through. I'd try hard to find a doctor that "wil" prescribe LDN for you.

It took me a few months but I finally found a wellness /functional medicine doctor who prescribed it for me. I live in Kansas but found a reputable compounding pharmacy in Colorado that uses correct fillers in order to receive the maximum benefits of LDN. It's called Belmar pharmacy. They ship for free. My doctor faxes the prescription to them and they ship it to me within 3-4 days.

I have RA and I'll say the relief I get from LDN is more mental/emotional. I was struggling with depression over my diagnosis and I also had fatigue. Since taking LDN I have more energy, and I'm happier despite my RA. As far as pain goes, I'm on sulfasalazine and occasionally prednisone.

Stella

[aredtigress Administrator]

Asmithla,

I'm sorry to hear that you're struggling so much. LDN should help you with both Hashimoto's and Fibromyalgia. I'm surprised that your local Rheumatologists are being negative, as the studies for LDN & Fibromyalgia have been widely distributed in that specialty. Doctors...sigh.

Let me know where you're located and I'll see if the Trust has any doctors listed in your area. If that doesn't work, we advise you find a local compounding pharmacy, call them up and ask if they have any doctors currently prescribing LDN. If THAT doesn't work, then we have to work on educating the doctors you already see - the Trust has a great packet of information for doctors.

Michelle

[Asmithla in reply to aredtigress]

Thank you for your post! I am in Monroe, Louisiana

[aredtigress Administrator in reply to Asmithla]

I don't know Lousiana's geography at all, would either of these doctor's be within driving distance for you?

Karen Dantin MD - Baton Rouge

Dr Lisa Marie Chambers Pate - Covington

[Scazzoh]

Have you heard of the Auto Immune Protocol? It's a lifestyle programme for people with autoimmune disease. I have Hashi's and have been following it for a few months and feel much better. The diet is very strict to begin with but you can introduce things when you start to feel better. If you follow this link, it takes you to a really good website, Paleo Mom and there is information there about how to find a functional practitioner in the US. I am in the UK and get my LDN prescribed by a FP. Good luck!

[Scazzoh]

thepaleomom.com/?s=function...

forgot the link. dur.