More Engagement: Hi everyone. I am looking to... - JIA-at-NRAS

JIA-at-NRAS

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More Engagement

6 Replies

Hi everyone. I am looking to drive up the engagement on this forum. Having a daughter with JIA myself I know how useful it can be to support each other and to celebrate the small wins in life with a community that 'gets it'. My question to you is how can we engage more on this forum?

6 Replies
strawberry567 profile image
strawberry567

Hello Debbie

I have called you many times for support over my granddaughter and found it invaluable. I would be very happy to be part of an active forum .

Whilst reading some past posts is there any evidence that Methotrexate causes infertility in JIA children?

in reply to strawberry567

HI, it has been lovely to talk to you. Regarding the methotrexate there is no evidence that is causes infertility, it is advised to stop taking methotrexate before planning on having child. Some do say stop for 6 months beforehand, however it is always best to talk to a HCP, when the time is needed. Hope that helps.

RAat13 profile image
RAat13 in reply to strawberry567

Hey, JIA warrior here. I know it's been a few months since you posted this, I was on methotrexate for a good few years from the age of 13 till I was 18/19. I now have 2 daughters aged 12 and 2. It is advised to stop but if your granddaughter is planning a family it's best for her to plan it with her Rheum consultant and nurse as theres alternatives she can have instead. Hope this helps x

strawberry567 profile image
strawberry567 in reply to RAat13

Thank you. Aya is still very young and I really hope the future will see better advances, better drugs and a possible cure. You are amazing in how you have coped and in giving everyone such tremendous support . A real inspiration. Sarita x

LeafyScene profile image
LeafyScene

Hi Debbie, thanks for your message may be a link to the forum on the website and info given to the New to JIA right start.

Thank you so much for your post. I agree, I will look at making it more prominent on the website and at the New2JIA Right Start as well. 😀

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