My son (1 year and 7 months) has oligoarthritis. What should I expect? Thank you!
Oligoarthritis: My son (1 year and 7 months) has... - JIA-at-NRAS
Oligoarthritis
Written by
Xdiana
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5 Replies
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Hi Xdiana, so sorry to hear this news. My daughters were diagnosed at 18 months so can empathise with all the questions you might have. For us the worst thing was getting the diagnosis, so well done for getting this far.
The condition is different for everyone so it’s really hard to tell you what to expect.
Short term I guess the biggest thing will be to work with your consultant to get you medication right. To be fair this is not a straight forward process and may require some trial and readjustments over a period of time. My advice is always to spend some time getting to know the consultant and the specialist nurse. They have the skills and knowledge you need and my experience is that they are pretty good across the country.
Long term this is a chronic condition. So whatever happens your child will always have the diagnosis. It is also a condition that can have ups and downs. Both my girls have time with few or no symptoms and times when the condition flares. But it is impossible to say exactly how this will affect you.
Over the years I have met hundreds of adults who have grown up with the diagnosis and who are leading great lives with the same ups and downs as anyone else with or without a diagnosis.
Secondly there is a whole community of families out there going through the same experience. Please don’t think that you are on your own. There are some good support services including NRAS, JIA Matters and CCAA. You can find them all on the internet.
Most importantly you have a beautiful baby. Don’t let a diagnosis get in the way of being a proud parent.
Good luck
Your daughters take MTX and Enbrel?
Thank you for your reply. We live in România and our doctor is in Viena. So it is very difficult..
Ah, sorry, I assumed wrongly that you lived in the uk. I have to be honest and say that I have no knowledge or experience of services in Romania or Vienna. Very happy to share experiences ifthat helps in any way. Good luck.
Is it possible to have a flare while being on Metotrexat and Enbrel?
