Hello, my 5 year old daughter was diagnosed two years ago although she has obviously had ITP for a lot longer than that as she has bruised really badly since before her first birthday.. Her count has always been between 11 and 26, normally arround 16. Although she now only has counts done twice a year so inbetween times I have to guess! She is cobered in bruises and petechiae all the time, never less than 50 bruises, normally over 100 and for the last few months about 170. She sometimes bleeds loads if she cuts herself( upto a cpuple of hours) and has had a couple of nose bleeds. She had a platelet transfussion once after a nasty head bang and recently she has been given tranexamic acid for any nose or mouth bleeding. She hasn't used any yet but has a wobbly tooth so may need to take some when she looses that.
My question is what restrictions do you place on children with ITP? I've seen a lidt which says counts under 20 nearly nothing is safe. I've heard people say they shouldn't be on swings and climbing frames also. We let our daughter do most things although we say that trampolines and bouncy castle she can only do on her own and she must wear a helmet for bikes and scooters. At school they have a very high clumbing frame and I know she goes on that unsupervised which worrie me as the monkey bars are so high that four children have broken arms on it in 18 months. What precautions do you put in place? Should I be more careful?