Hi, I was diagnosed 9 yrs ago but i went into remission really quickly (about 6 months) and nothing else since and bloods not checked regularly etc, the just before Christmas, bruising and fatigue led to me contacting my GP and they agreed I needed bloods done , platelet count came back as 24. Had a few weeks of prednisolone which initially worked but platelets dropped to 17. I must admit I hated these!! Now my haematologist has got me on romniploston. Seems to be working. After 5 weeks platelets 81.
Can I ask what side effects people have had? I’ve had some nausea, but mainly joint and muscle pain, particularly in shoulders. I now have also had a sudden drop in haemaglobin, anyone else had that? I am feeling a bit lost in all of this, it’s not come at a good time (husband terminally ill with bowel cancer) and I’m stressing about it.
Many thanks for reading