I'm currently on 15mg of prednesone. I'm really wanting to be done with this drug. I'm wondering what tapering schedule other people have followed. I am listening to my hemotologist but I would like more info on how tapering went for others....
I HATED being on Prednisone, so you have my sympathy. I started out on 90 mg, and it took about four months or so to taper off it. Like you, I could hardly wait to be done with that horror. I don't remember most of that time, but I got tapered off about five mg a week until the last couple weeks when I think it was every four days. I do remember feeling as if I was poisoning myself every time I took a dose. I know others do well on it, and I am glad for the ones who tolerate it, but even my hematologist says he'll not be putting me on that medicine again.
The slower the better. I’ve had to taper twice. First time was too fast so my platelets dropped a lot. So back on prednisone again. There will be side effects when you come off to. I live with no meds at a platelet count of 25-30.
Have patience and just keep the thoughts. Just a little bit more.
Wjoyful is right. As I understand it, tapering off allows your adrenal gland to start functioning properly again. Prednisone is a shock to the system, both coming and going. But you'll get there!
Happy new year to you all.
I am in the same boat as you at the moment. I am currently on an alternating day of 20mg and then 15mg until tomorrow when I am on 15mg for 2 weeks and then back for bloods on the 16th.
When I spoke with the consultant he too said that the lower the dose gets the slower the taper, so I know how you are feeling as all the energy and good feelings I had with the higher doses is not there anymore.
He also said that from the point we are at it will take at least 3 months or even longer to get completely off them.
I don't mind taking the Pred if it works and puts me in remission for a while, but if it doesn't last I won't be too happy.
Hi, I was on 85mg daily when I dropped to 4 in July. Now on small dose of NPlate/Romiplostim fortnightly and 25mg daily and planned to drop top zero over 5 weeks, hope this helps
to be off this stuff. I'm wondering what everyone else's experience with tapering has been.
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