Mum critical

[djsioux]

Mums taken a turn for worse dr just called please pray for her 🙏

[Sepsur]

There can be plenty of setbacks - this does not mean the worst - because we are so weak & immunosuppressed, we pick up every infection going.In ICU I got MSSA, EBV, CMV, VRE & glandular fever - all are viral infection which took their emotional toll on my family & knocked my progress each time.

[djsioux in reply to Sepsur]

We just got back from the hospital, they let us go in to see her and they have started her on some more antibiotic and she had stabilised when we leftIts the first time we have seen her since she went in she has so many machines she's connected to.

The doctor said this morning if she didn't improve in the next 24hrs it would be the kindest thing to turn off the ventilator but we said no way do we want them to do that, he said if her heart fails they would not do cpr, but her heart is holding out and strong atm so praying with everything we've got atm that she is able to fight off these infections

[Sepsur in reply to djsioux]

They always use the 24hr goal - almost like a threat. I appreciate that on occasion CPR is the only option but when my heart failed a few times - they used the electric paddles on me to get my heart back into the correct rhythm.I was also given every opportunity to survive - no-one threatened DNRs or turning off machines. They told my family several times, I wouldn’t survive the night - come in and say your goodbyes.

I’m still here nearly six yrs on.

[djsioux in reply to Sepsur]

They said it was up to us about withdrawing support and they woukd respect our wishes but they said they would not consider cpr if her heart failed which we are not happy about obviously and I don't know if we can insist they do it, he gave us the opinion that was out of our hands! He did say her heart is strong atm which is comforting but we obviously want them to do whatever they can to get her to pull through this!

[Covidkid]

Oh darling! I’m praying and please stay strong x

[Gooddaysunshine]

Thinking of you and hoping your mother will pull through.

[Sonia-88]

I’m so sorry to hear this. I can share that people I know who have had family members called in multiple times have pulled through.Sending you love and strength x

[paris2021]

Thinking of you! Three weeks again we were called in as they said my brother was critical. We thought we were going to loose him. He pulled through. Keep praying keep hoping and keep the faith x x x

[djsioux in reply to paris2021]

I am praying and sending out as much positive energy as I can. I dreamt she was home with us last night and my sister did too. Was awake in the middle of the night praying and willing her to fight the infection.

We just spoke to amuse who said she's still stable and to call back after the doctors have done their rounds.

Stable is good, shes fighting

How's your brother doing? Xxxx

[Sleepalotmore]

Got everything crossed xx

[Hidden]

I am sorry to read this and hope your Mum improves. If it is of any concellation my family were told I was not likely to make it, but I did improve.

[djsioux]

We called this morning and shes still stable from yesterday afternoon. They started her on more antibiotics and were going to start her on some cortisone treatment so hopefully she will start to head on rhd right direction again. The doctor was really hopeful early this week that they coukd give her a tracheostomy as she was responding well to her treatment.

It seems set backs are all part of the rollercoaster ride, we were so afraid yesterday we were going to lose her and the doctor advised us if she continued to decline we should consider withdrawing her support which we point blank refused, we Will never ever give up on her!

Stories like your give us hope and me and my sister both dreamt last night she was home with us so hoping and praying this happens ASAP 🙏

[paris2021]

I am praying for you also. My brothers trachy was meant to be done in his second week and then he got sepsis and pneumonia which set him back, became critical and last week had the trachy fitted. He is now able to speak a little with the valve in and is having abit of physio. We even had a little face time with him with the valve in a few weeks ago the nurses told mum he was end of life. Thank you for asking x x This forum has been helping me keeping me sane and yes I learnt the same about the setbacks xxx

[djsioux in reply to paris2021]

So good to hear your brother is healing ❤ and going in the right direction 🙏 We are praying for good news but holding onto stable atm 🙏

I hope your brother continues to make a good speedy recovery, and my mum and anybody else in this awful situation 🙏 take care, sending love xxxx

[elsieadams]

Lots of prayers and hugs to you all. It is most devastating when we can not help the one we love. I was hooked up to life support two years ago and the doctor kept telling my husband to make arrangements. He said I was strong and I did pull through thanks to having a strong heart. But it is also a long recovery time as well. Hope you get some better news soon. Blessings Elsie

[lynnmarr]

Hang in there my husband heart stopped for 2 minutes when they first put him on blood thinners and proned him! After that he actually stabalized and were able to Trach him two weeks later.Keep praying and be strong.

[djsioux in reply to lynnmarr]

The doctors are so depressing and don't give us much hope but we keep begging them to try and keep trying. Shes not responding to the antibiotics so they are giving her another one today so praying this one helps fight the infection. They've sent some sputum cultures off today so hopefully they will have some answers as how to help her fight this.

Last week she was doing well and they were talking positively about doing a tracheostomy and now this!!!

[lynnmarr in reply to djsioux]

Keep checking her oxygen levels and her White Blood Count numbers (infection) daily. Keep praying and be strong for her. I know the anxiety is horrible!

[djsioux in reply to lynnmarr]

The nurse told us on Sunday her oxygen requirements had gone from 75% on Thursday down to 60% and her white blood cells weren't concerning but hadn't improved, but that she was stable, no worse no better since Thursday and shd even said they were going to lower her sedation so they could lower her blood pressure meds but when we spoke to the doctor this morning she was so doom and gloom and said mum had had a bad night and her BP meds had been increased, we were too afraid to ask in what way was her night bad.....she didn't give us much hope and kept saying I have to prepare you but then said were not there yet!! So why say it 😒I really don't like speaking to the doctors

[lynnmarr in reply to djsioux]

Always get new numbers from them. Numbers don't lie. They do blood tests everyday. Hang in there