Someone knows a Hughes Syndrome specialist in Johannesburg?

[Joana_Doutor]

[MaryF Administrator]

Hi there, the best I can do is give you some leads to follow up.

1. prodder.org.za/civicrm/cont...

2. gauteng.co.za/antiphospholi...

and

3. Also a paper with medical names to track down in the hospitals: biomedcentral.com/1756-0500...

please let us know how you get on. Mary F x

[Joana_Doutor]

Hello! Thanks for your help. Regards. Joana

[MaryF Administrator in reply to Joana_Doutor]

I hope it helps you in some way. Mary F x

[Jade in reply to MaryF]

You do work hard Mary

[MaryF Administrator in reply to Jade]

I think we all do it together on here.. I have found this before, somewhere in my foggy memory banks! Mary F xx

[fourstar]

Prof Barry Jacobson at the Charlotte Maxeke hospital. Do not go to Dr Karen Gunthet at Floro clinic.

[eltrl]

I am in Botswana & have seen an excellent rheumatologist in Johannesburg who follows the work of Prof Hughes et al v closely, attends all conferences etc and is willing to consider seronegative APS. Her name is Dr Du Plooy and she can be found at the Wits University Faculty Practices/Donald Gordon Medical Center where they have a group of great specialists who are all engaged in research as well as seeing patients. The APS Foundation of South Africa apssafoundation.co.za is also an excellent resource.

Dr du Plooy saved my sanity and quite possibly my future health. As she put it - what if the next attack is a stroke? You shouldn't have to wait to have a stroke before getting treatment.

Hope I'm not too late with this, do let us know how you get on

Eleanor x

[MaryF Administrator in reply to eltrl]

Thank you for this valuable feedback! Mary F x