Help please!!!!: Hello I'm having blood... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Help please!!!!

hartnell5 profile image
4 Replies

Hello I'm having blood tests done ana and thromb and I don't know what they are for I thought the antipholispid was factor v something because my doctor thinks I have sle and antipholispid syndrome as I have had 9 misscarriges and a still birth and with my first born I had severe pre eclampsia. And getting terrible headaches ,memory problems ,muscle aches ,and my skin is awful Lacey looking.

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hartnell5
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hartnell5 profile image
hartnell5

No not on any medication as yet. I'm in the uk. I recently changed drs surgeries as I felt my old gp didn't understand at all.

MaryF profile image
MaryFAdministrator

Hi there, sorry you have had such a tough time and glad the GP appears to be on the case, you do need a rheumatologist who understands the fine detail of the condition(s) and.. hopefully things will improve. Let us know where you are so we can indicated perhaps where the nearest expertise is for you. Mary F x

hartnell5 profile image
hartnell5 in reply to MaryF

Thank you all for youre kind words i will keep you all posted

ASigmon profile image
ASigmon

Good luck with yours tests. Like the other respondents, I am so sorry about your health problems. You have found the right place to get support. A bit of detail here might help you. A number of tests are used to diagnose blood clotting disorders.

• The ANA test (for anti-nuclear antibodies) is a test to determine if you have antibodies that indicate an autoimmune reaction. (more info here: mayocl.in/V62bSt.)

•Hughes Syndrome (also called Antiphospholipid Syndrome or APS) is an autoimmune disease. So is Lupus.

•Hughes patients generally test positive for Anticardiolipin Antibodies (aCL). (More info here: bit.ly/WdRWgB). They may also test positive for the Lupus Anticoagulant (LA) (which, confusingly, is not a test for Lupus).

•Factor V Leiden is an genetic condition that can predispose a person to blood clots. It is not uncommon. A personal who has Hughes may (or may not) also have Factor V Leiden. (I do). More info on Factor V here: mayocl.in/X8WLGe

• Good places to find more about Hughes syndrome: bit.ly/XE9Y6v. I also have a list of resources at: bit.ly/K8al3i

Good luck!

Anne

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