re: Hot pulling sensation on my right leg around the knee area

[tAigers]

Hi there,

Has anyone ever had the feeling that one of the veins is being pulled and is on fire?

[CanaryDiamond10]

Hi tAigers:

That's a little vague. It could be a myriad of things from muscle pull, osteoarthritis, rheumatoid arthritis, vein inflammation. The possibilites are endless with that much information. I'm afraid you should probably make a call to your emergency room and try to be more specific with the emergency room nurse. Are you previously diagnosed with anything? Age? Previous medical history. Without that information it's a little hard to identify anything specific. Write some more specific symptoms down and some helpful notes for yourself to explain this symptom and your past medical history. Then get a little direction from the professionals in the emergecy room. They may want to ultrasound it or at least examine it. Perhaps an adjustment to any meds you may be on? Well, not a time to guess. Make the call. You'll feel better and sleep tonight.

Warm wishes,

Canary

[tAigers in reply to CanaryDiamond10]

Thanks I will give the hospital a call. I am 37 years old with ckd and aps. Blood count isn't great either and I have had a transfusion so that may have something to do with it....

[BrazilianBade]

Hi there, the only time I've felt that was when I had a dvt. Angio doc said i also had flebitis. I'd go to the hospital, especially considering that you are an ApS patient.

[tAigers in reply to BrazilianBade]

Thanks for the response I will phone now....

[jessielou]

Hi hon

Definitely get checked out, better safe than sorry! We all know our bodies and if something feels wrong, don't ignore it!

Recently had another dvt and as usual was busy, but had to go get it checked ended up on clexane for a while. Wasn't going to go cos it didn't hurt as much as previous dvt!?!? So you never can tell!

Let us know how you get on hon!

Take care gentle hugs love Sheena xxxxx

[tAigers in reply to jessielou]

Thanks Sheena will do ..thks for the reponse....

[MaryF Administrator in reply to tAigers]

I think I would take the time to get things investigated as that does not sound quite right to me, do please let us know what they say, and trust your own instincts. Mary F x

[GinaD]

I don't know, but it sounds similar to what my DVTs felt like. DVTs are relatively easy to diagnose, and if you have one you really want the docs to find it before it decides to take a trip to somewhere else in the body, if you don't have a DVT --so much the better. (?) but do get it checked out.

Gina

[tAigers in reply to GinaD]

Hi Gina,

I didn't go to the hospital in the end as:

1. I hate hospitals and 2. the pain went.

The leg is not the only place where I am getting sudden pain with fluttering blood. I have told my nephroloigist this countless times and she doesn't think it is anything to worry about. I have researched online and this I believe it to be part of APS. I am only learning about APS. My nephrologist says that I have had not had a bleed from APS but she believes that the APS caused the CKD. I am confused.

I am trying to teach myself about my illness. I have had private health insurance for years but suddenly stopped it when I was in college and now even though I have resumed it I will not be covered for a pre-existing condition for another 4 years this means I need to stay with the nephrologist I have. She is nice but I feel she doesn't tell me the whole story.

if you have any advice or web addresses that you could share I would appreciate it.

Thanks for the response,

Catherine

[MaryF Administrator in reply to tAigers]

Hi there please feel free to educate her further with papers, medical ones which you can download from the Hughes Syndrome Foundation Website, and you could also pop this across to her:

youtube.com/watch?v=CFi9KpK...(Not working as expected?)

Best of luck: Mary F x

ps I have handed out several of Professor Hughe;s books to people involved with myself and the children!

[tAigers in reply to MaryF]

Thanks Mary I need to have a chat with her. I will tell her about the site. I am not sure what her thoughts are. My friend did recommend Aloe from Forever Living have you heard of this?

[tAigers]

Hi, well my friend suggested it to me. I would drink it but there is a renal nurse involved in the business and she will be able to tell me about meds. I was just wondering if it was effective in boosting the immune system..

[MaryF Administrator in reply to tAigers]

It can sooth things. I use lots of aloe vera... however that particular company can at times seem to have very heavy pyramid style selling techniques! be careful. Mary F x

[MaryF Administrator]

Yes echinacea can really aggravate autoimmune, I took it years back and it made me so ill... I now realize it can actually alter the white cell count. I took it years ago, of course not realizing that I had systemic lupus or any of my other things, my friends with colds and things felt it helped where as I felt absolutely terrible the twice I tried it. medherb.com/Materia_Medica/...

Mary F x

[tAigers in reply to MaryF]

Will be giving it a miss then.I wasn't well the last time. I like you took it but it made me I'll too....

[tAigers]

Think I will give it a miss then. I did try some before I was diagnoised with all this and I have to say I felt like my whole body was on fire....