How are your hands, feet and ankels Squeezer? Is the swelling, rash and pain still appearing and disappearing for no apparent reason? In addition to time dated photos, it might be a good idea for you to document your symptoms in a daily journal. I've been keeping one for 10 years and I can't count the times it has corrected my memory. When your MD asks, how often does this occur? You can look it up. When he asks duration of it, you can look it up. Doctors are so documentation oriented that you will be less likely to be debated if they see you documented your symptoms verbally and photographically at the time it happens. It seems to me that one must wait a long time to be seen there in England. A rash such as yours could come and go several times revealing a pattern the MD would not see. But your journal would reveal it. It only takes 10 minutes or so a day. I rate my pain on a 1-10 scale. For you, I'd add mobility on the same scale. Mental attitude (good or bad day). Any new symtoms or theories and questions I want to be sure to ask. Write the answers in that day's journal so as not to be forgotten. This takes less than 10 minutes and reveals so much as a whole. It's saved my memory so many times my MD asks all her chronic pain patients to keep a "pain journal" now. It not only helps you it helps the MD. I do hope that rash hasn't reappeared. Try to keep salt, even sea salt, out of your diet. If it is hot where you are, get in air conditioning or hop into a room temperature bath. Gently, move your toes, ankles, fingers and wrists under the water say 20-30 times and then just let them float a little while. If you do not feel pain do it again. The more you can get yourself to do it without pain the less the pain will be. The only thing to remember is - if it makes it hurt STOP. Just let your limbs float in total relaxation. I learned that in aquatherapy for swelled hands/feet (osteoarthritis). A pool is better than your tub unless you have a soaking tub, which is a very deep bath tub (heaven). I hope you are still on the mend. I couldn't help thinking about you today. Are you positive for APS? Keep the site posted.
apsfa.org This is a an American link for APS that is very informative and will lead you to other links of information for your evening reading. Send what you feel is pertinent to your MD before your appointment so that the MD can consult whomever he needs to. That way he will be better educated for your appointment. Be sure to keep a copy in your journal for your future reference. (or keep the link). Smiles, hugs and the best of luck on your journey.