Will this ever go away?: - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Will this ever go away?

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1964Moonstone
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Not if you've had two positive blood test results and symptoms. It sometimes only affects women in pregancy but not always - once you have a diagnosis, I'm afraid it's here to stay.

1964Moonstone profile image
1964Moonstone in reply to

Do you know if I could possibly ever be told how I got this Syndrome aka Hughes or Antiphospholipid Antiody Syndrome?

1964Moonstone profile image
1964Moonstone in reply to 1964Moonstone

I went to a cancer specialist and was told of this diagnosis and now I am on anticoagulant therapy, is that most likely what I have to do or is there another medication I really do not like this medication Cumadin.

in reply to 1964Moonstone

Hi There- I would like to know the answer to that too ! I have no family history of this condition. I have never suffered from Migraines but suffer with them now after being diagnosed with APS. I have two lovely kids with no pregnancy problems so where and how does it appear ? Wish I knew !!!! I am a Twin also but he does not have this condition so its a mystery.

Yes, warfarin known an Coumadin in the US is the usual form of treatment.

Hi

PLease see the other questions - Wafrain / Coumadin may not be as bad as it seems; I think the words "for life" always make things sound worse than they are.

Godd luck and take care

Tx

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