APS: Hi everyone, I just joined this... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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APS

Mosotho15 profile image
3 Replies

Hi everyone, I just joined this forum after being informed about it by someone who is a member.Me and my sister were were diagnosed with APS 5years ago.I am more concerned with my sister health and hope to learn more from other people's experiences.

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Mosotho15 profile image
Mosotho15
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3 Replies
KellyInTexas profile image
KellyInTexasAdministrator

Glad you found us. I remember being so relieved to find the support I needed here.

Where do you and your sister live? Which country?

I’d like to provide you with a link to website just In case you need info for specialists:

ghic.world/

Mosotho15 profile image
Mosotho15 in reply to KellyInTexas

Thanks, I am in the UK and my sister is in South Africa,my sister doesn't have knowledge of technology.She has had thrombosis and PE, I am worried because she gets her blood checked monthly which doesn't seem to work.I will be greatful for the links thanks.

MaryF profile image
MaryFAdministrator

Hi and welcome, we all learn off each other on here, by reading the questions and answers. Perhaps your sister will also join us? There is also good information on our charity website in case it is of interest to you: ghic.world/ MaryF

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