Hi all,hope your all as well as can be...
just an update really to say i had my complaint response from guys hospital,very well managed and my diagnosis is still in place,they have tried to say that it was lupus they were referring to as negative,and that fybromyalgia was responsible for just that episode of kidney problems.but that i do have aps. however it wasnt my words but the nurse that used the phrase 'you dont have an auto immune disorder' so i will write back to them. they have changed prescription procedure to ensure all prescriptions are sent and received through the post. and the official line is that dr k is still on sabbatical and no date for his return is known yet.
thanks for all your replies and posts when i was literally at the point of giving up and on the floor. only us hughies know the fight it takes to get diagnosis and the fear of that diagnosis being taken from us,and the damage not being treated can do to us.
thanks again xx