Hughes

[Hamy]

Both my daughter and and I have Hughes and my parentage is Eire.

We now know there is a lot of cases in County Kerry .

[Lure2]

Hi there,

Sorry you both have APS.

I have it also here in Sweden and I agree with APsnotFab but it is true that this illness may run i families (like in your case) but also it is worldwide. It is a rather new illness (known a little over 30 years) and very few doctors know about it.

Hope you have got a Specialist for you and your daughter. We need to have our blood enough anticoagulated at a steady level as it is too thick. It will never go away but it can be treated with bloodthinner. Try to read about it as much as possible as knowledge is power to us!

Best wishes to you and your daughter from Kerstin in Stockholm

[Hamy in reply to Lure2]

We saw Professor Hughes when we were first diagnosed in 2002(my daughter) and 2004 (me) and have been on warfarin since.

[MaryF Administrator]

Hi there, I have it, as do my children it does seem to run in some families. MaryF

[Hamy]

I am sure my dad had it and 3 of his sisters died of young stroke but the disease was not known then