Hi
I was diagnosed with Hughes syndrome I'm April after a second miscarriage.
After finding out what had caused them I felt relief that I wouldn't have to go through all the pain and heartache again.
After seeing the obstetrician I felt positive that all I need to do is lose weight and then go on clexane injections once pregnant.
However that was all the information I was given.
Towards the end on may I woke up with severe headache which was more like a.migraine, thinking that It would just go I slept the rest of the day.
The migraine didn't go and went to the gps. I informed the gp about having Hughes syndrome as I know it causes bloodclots. The doctor just told me to go home and rest if it hadn't gone by the end the week to come in.
Well to cut a long story short, the migraine went for a week and cameback. I went to the doctor 4 times to be.told to rest.
I'd explained I had tingling down my arm and face but was told I'd more likely get a blood clot in My leg than head.
So after that I went to hospital as.it wasn't going.
After three weeks.I was sent for an Mri and was.told it would be three weeks for the results.
After 3 days I had a call to say Id got Venus sinus thrombosis which was a clot in the brain and needed to be treated with walfarin and clexane.
I feel so lonely and upset that no one listened to me of how bad it was.
I should be lucky I'm Alive and.only.have some memory problems but at the age of 24 with a small child and a caring partner it all seems too much to cope with.
Has any one else felt like this?
Sorry for the long post!
