Sleep: I have weird dreams every night... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Sleep

panda60 profile image
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I have weird dreams every night and wake up in the morning with my body feeling like lead and completely fog bound. It takes me a couple of hours at least to come to and even then I still find I get in a muddle. Turned up for an appointment on the wrong day on Monday. I have to rest for an hour in the afternoon otherwise I would have to go to bed after dinner. Try to plan and pace myself but some days I start to panic on how I am going to find the energy to get through the day. Felt so bad this morning that I took my inr but it's normal.

My thyroid is ok but I was diagnosed with fibro three years ago. I just don't think I am getting proper sleep. Does anyone else suffer like this or know where I can find information? Thanks

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panda60 profile image
panda60
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MaryF profile image
MaryFAdministrator

Hi I have to pace myself due to flares of my various things and also the fatigue, however my Thryoid all came back clear but I clearly had the symptoms, so went privately and had detailed tests where it all showed up, also the right Professor noticed the sluggish reflexes in my feet. The testing is very very poor and also the banding for results very narrow.

I have put this on previously but will do so again for general interest: youtube.com/watch?v=lyc8N_m...

MaryF

Lure2 profile image
Lure2

How often do you cheque your INR? Are you retired?

I cheque my INR every second day to have control. We are lucky to have a testingmachine. I am so lucky that I am retired so I can decide to take a rest in the afternoon when I need one.

Also I exercise as much as I can. That makes you sleep better and your memory and thinking ability will improve-.

Best wishes for a good nights sleep. It is morning here. Kerstin in Stockholm

Lure2 profile image
Lure2

How do they diagnose fibro?

Kerstin

Lure2 profile image
Lure2

Thank you APsnotFab. That is my impression here in Sweden also.It can be misdiagnosed so easy,

Kerstin .

Dee121 profile image
Dee121

Hello Panda, I also am having weird dreams. The other night my husband woke me up because I was moaning in my sleep. At t he time I was dreaming that I was at the top of a stair case with something in my hand that I was going to hit someone with. I was really scared in the dream and when I woke up think that's why I was making the noises. But after this I wasn't able to get back to sleep. So my fatigue for the rest of the day was literally unbearable.

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