Finally getting referred to speak to ... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Finally getting referred to speak to someone about my APS after 17 years hopefully i can get all the answers i need. I need a blood test

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For thyroid does anyone else have this problem.

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MaryFAdministrator

Hi it is is fairly common to look at thyroid issues with Hughes Syndrome/APS. Professor Hughes himself frequently write about the trio of disease which is APS, Sjogrens and Thryoid problems. Be aware that there are real issues around thyroid testing with the actual tests not being foolproof and the actual parameters of the testing being rather narrow, this complained about across the world. The NHS forum of choice is Thyroid UK, which has a forum on this same HU platform, and their charity website also carries very good information, I joined myself once I became suspicious, and indeed have sub clinical thryoid issues myself. MaryF