Research into dementia: Would be nice... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Research into dementia

daisyd profile image
6 Replies

Would be nice if they discussed Hughes syndrome as well.

I sent an email to the local paper yesterday nothing back yet!

An opportunity missed

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daisyd profile image
daisyd
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6 Replies
Manofmendip profile image
Manofmendip

Absolutely.

Dave x

I'm afraid it would muddy the waters for the dementia charities - they are just trying to get their message out there for now. Maybe in the future .. And good on you for contacting your local paper, they may take it up as a separate story - let me know if they do as I have a factsheet for the media :)

daisyd profile image
daisyd

Thanks Kate I will do, it's just so frustrating thinking for years that I was getting dementia and what a difference, Clexane and Warfarin made, probably a bit late as I no longer have the fog but my brain is a bit of a jigsaw unable to find the missing bits

Zimmer profile image
Zimmer

I am waiting for an appointment for my son to see Dr Scully at UCLH apparently she know everything about APS--- we are keeping our fingers crossed. All he does lately is sleep! Regards to all.. Belle

daisyd profile image
daisyd

Hi Belle

Hope you don't have to wait to long before his appointment, horrible to see your Children when they are unwell.

Thinking of you

mevangeline profile image
mevangeline

Does anyone have good information on the connection between APS and dementia?

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