Hello I'm new to this website. - Hidradenitis Supp...

Hidradenitis Suppurativa Support

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Hello I'm new to this website.

EbonyM31 profile image
2 Replies

I'm new to the group. I've been suffering with hidradenitis suppurativa for going on 4 years now. I've been given many medications but nothing has worked for me. I experience severe pain every month. But since I'm just 31 years of age I guess I'll face this problem for the rest of my life.

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EbonyM31
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Hun77 profile image
Hun77

Hi! Welcome! Hope you're not suffering too much at the moment. I'm going through a bad time at the moment but I know why. I red the hidden plague which is a fascinating book about hs and I started the diet she is taking about in the book. She mentioned that the hs is going to be aggressive because your body is not used to this change but once everything comes out of your body you will go into remission. There is a light at the end of the tunnel. I am so happy that finally we have some answers to hs and how your body reacts on food! Very very interesting! You understand better your condition and have a lot of answers. You will be shocked believe me. I started 3 weeks ago no sugar no wheat I'm really serious because I want to have my life back after 11 years and over 40 operation. I'm on stage 3 so I'm a big sufferer with no remission. Food is not worth it! Better quality of life is. Just check it out! Have a read you have nothing to lose! Good luck!

EbonyM31 profile image
EbonyM31 in reply to Hun77

Thank you. I will check it out. I'm actually gong through alot of pain now. I have a breakout under my right arm. I've had surgery on that arm at least 3 different times and it's even more painful when they come back on the same location where you have had surgery on. Actually all together I've been through four different operations in different spots on my body. My recent operation was August 7,2017. Two weeks later I had a breakout on the same spot. I'm hoping I can get help soon. I'm also a stage 3 and I suffer a great deal as well.

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