After years of failure to recognise symptoms in my boys behaviour, they were eventually diagnosed with Aspergers in late teens , one having ADHD then now has ADD. I have now recognised they both have PDA as well as Asbergers.
There are very few places who will give a formal diagnosis, three in England at £3,000 each privately. This condition does exist for so many Specialists butwe live with it every day. It does exist but there is such a shocking lack of understanding among the so called professionals .
There is now a Parental led website , amazing information.
Petition to have this neurodevelopmental illness formally recognised . It's destroying families and lives. Please read the story attached to the Petition.
If your child has been diagnosed with ADHD or Asbergers , anxiety, anything in those lines and the diagnosis does not quite fit read about PDA. It you can't get a diagnosis for Autism spectrum read on .It your child has rages, severe mood changes, reluctance, Jeckyl and Hyde personality , can be utterly charming then vile, goes out of their way to avoid situations then go to PDA website. Look at questionarre. Super books to read.
These children , young people and adults need a completely different approach to their needs, including teaching, normal AS methods do not work.
Brilliant blog with great links.
Please spread the word on Social Media, get PDA formally recognised.
It is possible to have PDA on its own, often with ADHD or a combination eg PDA and Asbergers.
So many people are failed by blatant misunderstanding of PDA , land up recluses at home,with severe mental health issues which can if treated correctly have a dramatic positive effect instead of being terrified of the world. This late recognition
in turn has an appaling effect on families and carers and the people themselves.