After years of failure to recognise symptoms in my boys behaviour, they were eventually diagnosed with Aspergers in late teens , one having ADHD then now has ADD. I have now recognised they both have PDA as well as Asbergers.
There are very few places who will give a formal diagnosis, three in England at £3,000 each privately. This condition does exist for so many Specialists butwe live with it every day. It does exist but there is such a shocking lack of understanding among the so called professionals .
There is now a Parental led website , amazing information.
pdasociety.org.uk/families/...
Petition to have this neurodevelopmental illness formally recognised . It's destroying families and lives. Please read the story attached to the Petition.
change.org/p/alistair-burt-...
dailyrecord.co.uk/news/scot...
If your child has been diagnosed with ADHD or Asbergers , anxiety, anything in those lines and the diagnosis does not quite fit read about PDA. It you can't get a diagnosis for Autism spectrum read on .It your child has rages, severe mood changes, reluctance, Jeckyl and Hyde personality , can be utterly charming then vile, goes out of their way to avoid situations then go to PDA website. Look at questionarre. Super books to read.
These children , young people and adults need a completely different approach to their needs, including teaching, normal AS methods do not work.
understandingpda.com/my-dau...
Brilliant blog with great links.
Please spread the word on Social Media, get PDA formally recognised.
It is possible to have PDA on its own, often with ADHD or a combination eg PDA and Asbergers.
huffingtonpost.co.uk/neil-a...
So many people are failed by blatant misunderstanding of PDA , land up recluses at home,with severe mental health issues which can if treated correctly have a dramatic positive effect instead of being terrified of the world. This late recognition
in turn has an appaling effect on families and carers and the people themselves.
