Freedom from the pills: I recently took part in... - HIV Partners

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Freedom from the pills

Ydontujustdie profile image
2 Replies

I recently took part in a research video about a drug combo that is administered by a monthly injection into a muscle. It was mainly concerned with packaging and presentation of the drug and documenting a patients emotional state in the period leading up to the first dose. I found it all very patronising and the way that simple information was repeated was like Watching sesame Street.

I thought that this was a theoretical treatment but after the interview I was told that the treatment is a reality and has completed clinical trials. It just isn't available here. The film crew had no other info. Just as list of questions and some mock ups of the packaging

If anyone has any knowledge about this treatment and if any clinics will be able to provide it please let me know.

I feel like a carrot has been dangled in front of me. I have always been able to adhere to my meds but recently I have been so unwell that I can sleep for days and not be able to work out how many doses I have missed.

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pauldecle profile image
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Hi,

This is a very exciting area of treatment development and I have been following it for some time. Below is an extract from an article on the i-Base web site with addresses your query.

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Currently, the phase 3 studies for long-acting cabotegravir plus rilpivirine are still ongoing. According to listed information online, the ATLAS and FLAIR studies are now fully enrolled. The first results are expected in June and September 2018, respectively.

The company then needs several few months to compile the results. This means, if good, the regulatory agencies are unlikely to start evaluating long-acting injections until late 2018/early 2019. If approved later in 2019, the NHS will take at least until 2020 to decide if they will pay for access.

/..

You can find the full article on this page of their web site: i-base.info/qa/14069

I am sure you will find more information by searching the term 'long-acting antiretrovirals' you may want to ad 'in the UK' to your search.

I hope this helps.

Kind Regards,

Paul

Ydontujustdie profile image
Ydontujustdie in reply to pauldecle

Thanks for the info Paul. This type of treatment is so important to some groups who cannot have pills. It might be worth putting pressure on the NHS to make it available sooner ( if the NHS exists

It must save money in the long term considering cost of treatment for people unable to comply with pill taking

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