Feeling better today

[sugarandspice44]

Morning everyone, sorry bn a bit moany on here for 2 days! As felt rotton on treatment! Woke up this morning feeling a bit more rested & a lot better physically, loving the sunshine!! Only on wk3 of 12 wks treatment so could still be a rollercoaster ride for me, but for now feeling good so will take each day as it comes, had news yesterday that virus undetected, so keep strong & taking your meds, you WILL get there, your a great. group & thank you for supporting me even on my not so good moany days lol

[Mizzkent]

Hi Sugarandspice nice to meet you😊 It’s good to have a moan that’s what we are all here for to support each other.The treatment will be over before you know it babes.What treatment are you on? Xx

[sugarandspice44 in reply to Mizzkent]

Thanks for your message, I'm on exviera, viekerax & ribavirin for hep c genotype 1a had it for 20 yes so pleased to have bn offered treatment now!! I'm on WK 3 of a 12 week course & had the good news yesterday that my viral load is already undetected!! But got to finish course to make sure there arnt any stragglers hiding/lurking lol. My haemoglobin has dropped due to the ribavirin but they're keeping an eye that! So many side effects from the ribavirin, lucky if I'm getting 2 hrs sleep each night, I'm absolutley exhausted, but as you say in the blink of an eye it'll all be over! I'm back at hospital to see liver specialist & to have more bloods done next Friday 20th April, hopefully it'll still be going in the right direction, I'll let you know after Friday, thanks for taking an interest in me & my case, really lovely meeting you too, hope all is going well for you!! X

[Mizzkent in reply to sugarandspice44]

Aww you are a real trooper💪 I was lucky I had Maviret like eating smarties compared to yours. Mine was 3a 8 weeks of treatment after 2 weeks my viral load had dropped from 8 and a half million to less than 10. So happy you have already gotten a good result🙌 stay focused on the end result you’ve got this babes.My treatment was a spiritual one I felt like I was healing all areas of my life.Take lots of time to rest and do things that make you feel good.I feel the best I’ve felt in years full of energy the brain fog has lifted. My memory has massively improved.I just have to get over the 3 month milestone next month and I will! If you ever need to talk have a moan or what ever feel free to pop me a message. Lots of love Cathy xx

[sugarandspice44]

Aww, thanks hunni, funny you should mention brain fog!! I've had a foggy brain for 20 yrs!! Could've been the hepatitis I suppose that was causing it, also mega memory problems like yourself, thought I was going mad!! Got no family that I can talk to about all this so you are my family & and am grateful for all the help & support that you & others on here are prepared to give, this group really is a lifeline for me as I'm sure it is for others too, love Julie x

[Chucky5516]

Hi,

So sorry to hear how you are struggling, have had many friends on Ribavirin, and they all said it was awful.

I was so lucky. I decided to hang back for treatment, due to new treatments being available and the side effects of the old ones being too disruptive for my work\life. I had regular checks to check the impact on health, but all was ok so I carried on waiting.

I was admitted on to the new treatment, and finished my 8 week course of Maviret last Wednesday. 3 tablets a day and no side effects. The nurse I am seeing is quoting 99% success rates, and the NHS have been set a target of eradicating Hep C in the UK by 2030. She said the people in the 1% who don't respond, tend to be people with end stage liver disease, heavy drinkers, or people who live chaotic lifestyles and who don't take their medication.

I am surprised to see so many people on these forums on the older medication. I got the impression they are trying to roll it out to everyone, such is the success and lack of disruption. It was as easy as taking 3 paracetamols a day (albeit much, much bigger). Is it a postcode lottery, dependant on your local authority? If so that isn't fair.

When I was first put forward for the new treatment of Maviret I was refused due to the price, and was told the goverment were only paying for genotypes that had traditionally not responded to Ribavirin and Interferon (genotype 1) and people with poor liver function. Eventually they dropped the price and I got the impression they were now going to treat everyone with the new drugs??

In 4 weeks my viral load went from 300,000 in every tiny droplet of blood, to 10. Not 10,000, but ten, 1-0!! Absolutely amazing. My liver function showed numbers of 160+ (A normal person is 33) showing the liver to be severely under pressure and inflamed, by week 4 it was down to 28!! This was all with another 4 weeks of treatment to go.

I finished my 8 week treatment last Wednesday and the nurse is pretty confident it will show clear. If it is still clear 12 weeks later, I will be discharged and cured. Absolutely amazing.

I hope everything works out for you, I know how hard it can be mentally receiving a diagnosis like this. It is not too long ago that for some people this could be a death sentence, so the progress by the Hep C and Liver Trust is astonishing.

Good luck for the future and keep us posted as it inspires others to push forward too.

[Sillysausage234]

🙋🏻‍♂️Good to put a face to the name.😊

[sugarandspice44 in reply to Sillysausage234]

Hi, just curious!! Do you know what a post fibro scan is? as keep seeing it written in posts on here, always willing to learn more!!

[Sillysausage234 in reply to sugarandspice44]

It’s a scan of your liver after treatment to see if there is any scarring ,depending on liver function tests as mine were ok no need for the fibro scan.

[Faithfull]

Just read first bit I say sorry a lot on liver trust for moaning as well bless your heart.

Oh I joined this by mistake As I'm on the adult ADHD foram gig confused