Viekirax, Exviera and Ribavirin 1st day

[Lucien777]

Well, good morning good people, first lot of tablets went down this morning, still feeling fine, perhaps a little spacey but fine so far 😊 Took three minutes to get them all down though, flipping viekirax are a bit big lol. Will report back as I go along, keep well and good luck to you all 😉😎🍀🍀🍀

[Sillysausage234]

Get some of them little actimel probiotic drinks and take with the tablets they are only small and that way even if you don’t feel up to eating at least your stomach is happy 😊

[bunnyroo in reply to Sillysausage234]

Yes, that was sterling advice, Alan, and I'm certain it's helped me, too, thankyou. A very wise and wonderful man 😊

[Sillysausage234 in reply to bunnyroo]

Thank you for your very kind words,hope you are ok now and your liver is having a well earned rest by the sounds of things🙏

[Cara78]

Good on You! There is a powder you can buy called "nature livings superfood" it may keep your iron levels in check. My aunt took it whilst on chemo. I've taken it on and off for years and my doc says I had the best iron levels. I'm taking it now too. Pricey at 20.32 but you only need a teaspoon in water or juice lasts ages.

[Sillysausage234 in reply to Cara78]

Have you got a scam going with these amazon vouchers🤔

[Cara78 in reply to Sillysausage234]

I never got my voucher😡👿lol

[Cara78 in reply to Cara78]

Well I don't drink or smoke or gamble or eat sweets so......😂

[Sillysausage234 in reply to Cara78]

Spend your money on designer leggings then,hope your sickness feeling has passed now and don’t have nightmares

[Cara78 in reply to Sillysausage234]

Il get my leggins cheap of good old eBay!

[Sillysausage234 in reply to Cara78]

Ok watch out for the snide ones the gusset goes baggy after a couple of washes😃

[Cara78 in reply to Sillysausage234]

Mine will be good quality like the £300 bag i got for 26. Second hand but excellent quality.

[Sillysausage234 in reply to Cara78]

I do like ebay I’ve got 100% positive feedback it might of been me who sold that bag

[Cara78 in reply to Sillysausage234]

😂😂😂

[Cara78 in reply to Sillysausage234]

I got a bag from seller on ebay and she put a lovely note in it with a coin taped to it. Nice touch. I was buzzing all day from that.

[Sillysausage234 in reply to Cara78]

I ordered a hot water bottle with a tartan cover before xmas for a fiver and I still haven’t got it yet 😂

[Lucien777 in reply to Sillysausage234]

😂

[bunnyroo in reply to Sillysausage234]

Hahaha as IF you know about baggy gussets!!! Alan you are wise, as I've just said, but also incredibly knowledgeable on women' gussets!!!(anything you'd like to add???😂😂😂)

[Sillysausage234 in reply to bunnyroo]

Only that make sure you don’t get a size too small 😊

[bunnyroo in reply to Sillysausage234]

Stobbit, you're killing me, can't get my breath for laughing!!!😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂

[Lucien777]

Thank you guys ☺️ yes I have the actimel at the ready, because of reading about it on here and all the good advice you all give, I was able to prepare myself😘 Awesome Cara, that sounds good, since my iron is always on the low side, I will definitely look into that! Still feeling ok, just need to pee a lot for some reason lol, and have a slight weird pressure feeling in stomach/ chest area, but nothing major, feels a bit like being bloated 😅 it can only get weirder I suppose lol 😂

[Cara78]

I was reading the success rate of your treatment! Impressive. Hope u get peace n quiet today.☺😇

[Lucien777 in reply to Cara78]

Just got a copy in on the clinic letter, maybe I'm overreacting but I'm.possed of by this paragraph and I quote: 'patient seems particularly anxious that she will suffer side effects and not be able to manage to work. She is partially concerned about fatigue. After a lengthy conversation I advised that the majority of people suffer little or no side effects'. Really? So if you suffer lots of side effects they make you feel like you are a wuss basically. Don't know might just be oversensitive... 😒 Also didn't panic and it wasn't a lengthy conversation, I simply asked a few questions which I think is fair enough. I have a headache at the moment so maybe I'm just generally a bit sensitive right now 😶

[Lucien777 in reply to Lucien777]

Pissed not possess lol!

[Lucien777 in reply to Lucien777]

Possed omg. I think I'll take a nap 🤐

[Cara78 in reply to Lucien777]

😂😂

[Cara78]

Some people! No compassion. I have to pick mine up daily here in sunny Glasgow! I asked why it had to be supervised, because they cost 25,000 for 8 week course. I could tell she was judging me but that's her problem. The doctor will look at it different from her as you are a human being and being anxious is valid .

[Lucien777 in reply to Cara78]

The thing is were we are , I have not once seen a consultant, all I ever got to see were the virological specialist nurses, they are also the ones that are overseeing the treatment. It's just unbelievable that they say majority of people has no side effects or only minor ones, when they know about Ribavirin. I suspect I should feel bad going to the clinic if I do have side effects, because I wouldn't be the norm then and supposedly a wuss. That's how it will also look if I go to my GP if I need to, as I must be the exception of I feel really bad from the tabs. She also wrote that she explained that should the fatigue become unbearable, I will have to self certify and possibly!!! get a sick note from my GP. So just fatigue then? I'm sorry for ranting but that pissed me off lol.

[Cara78 in reply to Lucien777]

It would p... me of too! Try n forget about her, it's her stuff. Every qualified person knows how it can affect people! You may not be really tired though. It says drink at least 2 litres of water throughout day. We'll get there. Maybe take at night so u can sleep through it. Xxx😚😊

[Lucien777 in reply to Cara78]

Thanks Cara, have to take six in morning and four in evening, can't be swapped round either as the viekirax 2x has to be taken morning too. The only reason I asked about tiredness was because I'm always so low on iron, and just wondered if this will ich worse than it already is, but apparently I will be just peachy (little sarcasm there sorry 😅)

[Cara78 in reply to Lucien777]

Lol

[Lucien777 in reply to Cara78]

Oh god daily pick up?! 😶That's much to bear when you might not feel so well 😓

[Cara78]

Fortunately chemist is a stone throw away!

[bunnyroo]

Well done you!! You're right, those flippin' Viekirax ARE big buggers, aren't they??! But you've done it! And think of it this way when it feels like forever: you'll be well finished amd maybe even got your 12week blood test back while I am still necking the big old bombs!!! Lots of luck, keep updating, I'm watching - everyone on here is, and wishing you well. You've taken that step to not just saving your life, but having a long and top QUALITY of life. Bestest of Best Wishes 😊

[Lucien777 in reply to bunnyroo]

Thank you for your kind words 😘 well had a normal night, didn't sleep great but never do anyway. Had a headache from yesterday afternoon all though night, but that's now gone very mild too. Maybe slightly spacey/ dizzy feeling, but feel actually quite ok today, feel better than yesterday. Off to work tomorrow morning, shall see how that goes 😅 Definitely lots of respect to you for going through 24 weeks and keeping up the fight. Hopefully we will all be free of this crap by the summer 😎!!! I don't know if I'm imagining this, but I had pain in my left foot since way before Christmas, and that has gone today for the first time, but can't believe that that could improve so quickly 😳 I suffer quite badly from joint pain in my shoulders and pretty much all over, but feeling generally better today. I'm hoping I keep feeling like I am, it's not great, but not horrendous either. But it might change further down the line, who knows. Luckily I have no nausea, only a bit of a funny eye sight/ spaceyness and headachyness. When I went to clinic to pick up meds it turns out that my viral load had gone down by itself to just a million from 1.6, I used to have like 400000 at the highest in 20 years, but last year it went to 1.6 million. So I'm thinking I can beat this starting with lower viral load has got to be good, right ☺️ hope you are all doing good, and hope the sun is out where you are! All the best and thank you for your support, it means a lot! 🤗😘💪

[Lucien777 in reply to Lucien777]

And yes the viekirax are ridiculous!!! 😂

[Sillysausage234 in reply to Lucien777]

You’ve got this pal👍

[Sillysausage234]

🙏 best wishes for your treatment bunnyroo your a trooper for sure.

[Lucien777 in reply to Sillysausage234]

She sure is 💪😘🍀🍀🍀