Now muscle spasms : I'm 21weeks in hep c... - Hepatitis C Trust

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Now muscle spasms

Debbiedoos profile image
Debbiedoos
β€’7 Replies

I'm 21weeks in hep c treatment I'm on ribavirin addie 3D

Iv been so ill fatigue ugaly rash on Leg and lower back.

I wish this was over now iv had enough even though im undetected now thats wonderful news and the price you pay for it

😣

The muscle spasms are when I'm relaxing or just getting into bed

And I make this silly whyning noise as I'm clenching my muscle

It's horrible and i get savitas dance

Wish this would stop

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Debbiedoos profile image
Debbiedoos
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7 Replies
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Sillysausage234 profile image
Sillysausage234

Hi deb feel for you being in treatment for so long why so long?and how far to go ?

Debbiedoos profile image
Debbiedoosβ€’ in reply toSillysausage234

Hi alen

I'm on Abbie 3D and ribavirin

I'm hep c type a

My treatment is for 24 weeks think it goes by how long you have had it and body weight.

I'm 22 weeks into the treatment and today I had a call from the liver nurse saying the staff had a meeting and all decided for me to stop RIBAVIRIN

But stay on Abbie 3D. Iv been undetected since week 4 I'm bit concerned to stop becouse I don't want to risk the virus comming back Hopfully not

It's realy affected me mentally and physically.

Hopfully that's it for hep c in my body

This evening I thaught shall I continue it's only another two weeks but if the Drs say it's ok then I am and so happy to do so I understand it will take a while to completely get out .

Iv s blood test in a months time so I'm hopping it's still undetected

What a ride this has been iv feel like I was dieing to be honest but the last 3 days iv felt better.

Thank you and thank you for replaying

navigatinglife profile image
navigatinglife

Hi, sorry to hear you have yet another horrible symptom but hang on tight, only 3 weeks left. It's amazing how you've got through it. knowing you're clear should spur you onto the finish line despite it feeling a million miles away. Ugly rashes and the intense leg itching are the pits. I hope once finished you start to feel much better after the first 4 weeks for sure. 🌟🌟🌟

Debbiedoos profile image
Debbiedoosβ€’ in reply tonavigatinglife

Thank you

Well Drs have stoped the ribavirin iv been on it for 22 weeks and it's been undetected since 4 weeks so hopfully it's gone.

I'm a bit concerned to stop nut I have to trust the Drs I was having to many symptoms my liver feels like it's dying and me if f4 cerroses to and my kidneys have a low count know idea what that means.

Thank you for replying it makes such a difference when I have responces from everyone who's replayed I'm graitfull for this forum.

Thank you x

Is there no end to the sodding side effects? YES there is, three weeks to go and you WILL see the back of them. Stay strong poppet xxx

Debbiedoos profile image
Debbiedoosβ€’ in reply to

Bless you thanks you the iv had them all but Drs have taken me of ribavirin been on it for 22 weeks so hopfully thates enough hep c was gone on week 4 .

I never realy had any symptoms or bad ones begor the treatment so don't know why it's affected me so hard but I do see others on here who feel the same way iv felt.

Thank you x

Debbiedoos profile image
Debbiedoos

Hi all its been months now and blood tests are negative. Wonderful.

But ....iv now rumatroud arthritis yep somthing else.

Now we have a good working liver but cerroces.

Iv been put on another drug sulfasaline becouse I now have sacroiliitis and bone marrow oedema of the spine apparently caused by hep c or the treatment Abbie 3d and ribavirin.

Lovely so here we go again blood tests every week to watch my liver .

Iv had one pill and it's given me a burning In My stomach and bad nightmares.

So I'm wondering should I come off them confused . Com .

Hope everyone is doing ok. X

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