Hi all i have just found out i have this this year and i managed to get to week 7 and i couldnt take it anymore, i was suicidal hadnt eaten for properly for oh i dont even no to be honest i was vomiting every single day not even water would stay down, i also have helicobactor pylora which is a disease of the lining of the stomach and various other illnesses which didnt help, at the moment nothing really has improved lost over stone inweight sick to death of tablets ruined me n now bk drinking jus dont no what to do or which way to turn. And to top it all i have had a daughter since this transfusion who has gone on to give me 2 beautiful grandaughters and its important she has the test ive asked her many times but its like she doesnt seem to care maybe thats me i dont no seriously........
In a state of despair....: Hi all i have... - Hepatitis C Support
In a state of despair....
I wouldn't be overly concerned, I have a wife and six children who I married after my initial discovery that I had the dragon, my wife was tested and all my children were tested because they all came along after I found out I had it also, and they are all negative for hcv. The new treatments are so mild and are all very effective. But as far as your other problems you should go to a gastrointestinal doctor to address them and from there the liver clinic. Don't despair there is help just take it easy and take it one day at a time. Stay positive and looking ahead to when this disease will be gone from your body good bless and I'll pray for you and your son to be cure,
That is my experience too. I had to have four children tested and I had had the virus for thirteen years unknowingly, living along side them. None of them had the virus. I was pretty sure I caught it at least before the last one was born and he was negative. It was nerve wracking at the time but all turned out ok. I have heard other mothers say that their children turned out to be negative too.
If your last hepc treatment was too harsh for you perhaps you will qualify for something like Harvoni on its own, without Ribavarin. Many people say it has little side effects and is only one pill a day.
I had Viekira Pak with Ribavarin and it was quite poleaxing at times and got very difficult towards the end. But somehow I did finish and am now hepc free. So don't give up hope. Things can turn round greatly for the better.
I also had gastritis for four years, which made me lose a stone twice as I couldn't digest my food or hardly eat some days. Conventional medicine did not help but a food supplement called Pepsin Gi did.It is zinc plus l-carnosine. And now my stomach lining has healed. You need to research all ways of getting rid of your bacterial problem. Conventional or otherwise. The internet is a great place for that. Stay positive. And look for ways of helping yourself.
Also the telephone helpline at the Hep C trust could be a good place for you to find support. I will look it up and put it in another reply. Good luck.
OMG Thank you so much for your reply it has helped me try get a little bit of focus, as far as i was aware depending on which strain you have resulted in which medication you could have, I have never felt so confused and helpless in my live, I also have Copd, osteoporosis, Fibromyalgia, Helicobactor Pylora think that's how it's spelt, cysts on ovaries, Endometriosis and cysts in my left breast n to finish up ive jus found out im goin thru menopause, I just don't no were my head is at xx
Hi there, that sounds like you have a lot to put up with. As regards treatment for hepc ...people seem to get different treatments depending on which area of the country they live in, and also that which is cheapest at the time and it also depends on which genotype you have. Because I had already been treated unsucessfully many years ago, I had to have ribavarin with any other drug that I got as I was reckoned to be more resistant to treatment. Same applies I think if you have cirrhosis. Some people get Viekira on its own, which is not meant to have a lot of side effects. I know someone in the SW who did Zepatier recently without side effects.
I know I couldn't have tolerated treatment if I had still been ill with stomach problems ,so I think you need to sort that first.
You also need to ask a specialist liver nurse or your consultant about having another treatment that you can tolerate. My liver nurse said she would have tried to get harvoni for me if I hadn't been able to get through what I was on.
Good luck. Don't give up hope. Just keep working towards getting yourself healthy.
Bless you you are going through it.
Iv arthritis and just found out iv hep c
Think I hot it from a tattoo years ago iv an appt on the 11th Sept for girst visit iv now idea what to expect
But what iv been through and going through it had to get better.
Im so tyerd all the time I run a buissness and dont know how I do it .
You must feel worse then me with all that you have and have to deal with
I don't know what's going to be given to me for treatment but im asking for treatment
I think my liver is suffering iv pain all the time .
Have you had treatment and if so what did you have ?.
And what do you do to deal with it.
Deb x
Thank you so much that has been a great comfort. I wish u wealth health n happiness as you dnr no What that means to me. I have never been able to speak to anyone regarding this not for the need but because there is just nobody there xx
02070896221, or 08452234424
helpline@hepctrust.org.uk
The Treatment can test your resolve thats for sure!...you have come this far so very soon you will be all clear! The Helicobactor Pylora is causing the symptoms you describe but although its very uncomfortable stick with it and you will come out CLEAN at the end! A feeling well worth some discomfort! Let me know how its going!
Hi I have my 3month bloods since treatment next week I'm still sure it's going to be negative can't remember name of tablets I got it was one a day for 9 weeks no side effects apart from sore heads in morning very expensive 400£ plus per tablet was tens of thousands but I've seen friends go through interferon treatment it looked hell mine was a 1 on a scale of one to ten theirs looked a ten fingers crossed all is well this week when I go to clinic! We can all beat this positive attitude and. Soldier on take care all hear from u all soon let u know of my results xx
Hi ,hope you are feeling bit better ,I finished Epclusa treatment 12 mths ago got rid of virus ,but I feel worse Poste treatment , every time I had problem liver people wouldn't believe me no help at all ,I'm scared that treatment has caused major problems to my immune system I am constantly exhausted with nausea severe joint pain,wish I could turn back clock to yrs gone by ! maybe I could get some satisfaction ,if you understand ,season greetings to all,
Need all the info and help I can get with this disease. New to having Hepatitis C
Starting treatment for gen type 1a in new year, anyone has any experience