Treatment and appetite: Hi there, since... - Hepatitis C Support

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Treatment and appetite

MintTop profile image
MintTop
β€’14 Replies

Hi there, since being diagnosed with hep c I've found, along with other symptoms, that I have no appetite. I know it says online that eating a balanced diet is important, but most days I don't have the enthusiasm to cook myself a nice meal so I'm mostly at my parents house or eating desserts and small meals often, because that's all I can stomach.

I'm about to start a treatment course of sofosbuvir and ribavirin and have been warned that my appetite will decrease, there'll be none left at this rate 😊

I was just wondering if there's anyone that's going through the same thing and has any advice? I've thought about having protein shakes handy, eating custard isn't a balanced diet.

14 Replies
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Hi someone has kindly emailed to alrt me to this. I recently underwent a course of riba (but in a different combination to you so not with the sofosbuvir but a different drug). I do not really recall loosing appetite as such - just becoming more 'picky' so that i did not 'fancy' things and couldnt be bothered to actually make anything. However once food was put in front of me I was hungry and would eat it all up. Fortunately the two people I live with were fine with me just eating and not participating in the cooking!! I lost little bit of weight but that may have been because my immune system went down after about 6 weeks and I had a series of nasty infections. I did not really feel 'me' for the 3 months of my treatment or indeed for several months afterwards but a year on am completely recoevered and was hep c free at end treatment and 3 months after. Now waiting for some 6 months after results.

MintTop profile image
MintTop in reply to parsnipbun

Thanks for the reply. This is exactly how I feel right now, can't be bothered cooking but I will eat anything. I'd rather eat desserts and fruit rather than savoury things. Luckily my parents don't live far so I think I'll go there 😊

Dlr35 profile image
Dlr35 in reply to MintTop

I would like to know why you chose this course of treatment

MintTop profile image
MintTop in reply to Dlr35

I didn't choose it, it's what was chosen for me. My genotype is 2. It should have been pegylated interferon and Ribiviron but because I've waited so long it's sofosbuvir and Ribiviron. I started treatment on Monday and nothing major to report, only I feel more tired and irritable than normal and I've had a headache for a few days.

Dlr35 profile image
Dlr35 in reply to MintTop

There are better treatments than the one you have the ribivibron can be rough I am told I took a 12 week treatment of zepatier equivalent to harvoni and no side effect and it was a breeze the virus is gone testing negative months after

MintTop profile image
MintTop in reply to Dlr35

What genotype are/were you? If you don't mind me asking. I think because I'm number 2, theres only so many treatments I can have, pegylated interferon + ribaviron. I might keep a diary of how I'm feeling everyday, not sure how it would help. At the moment, me waking up feeling sick and tired might just be the hep c as I've only just started treatment.

At the moment I feel like I'm just plodding along, like the lights are on but nobody's home, if that makes sense. I feel like my brain isn't working properly, I'm not being careful or concentating. I've even thought of stopping driving until it's all finished.

Dlr35 profile image
Dlr35 in reply to MintTop

I was genocide type 1

Dlr35 profile image
Dlr35 in reply to Dlr35

Geno damn auto correct

Hidden profile image
Hidden

Hi I going through same first week I could not stop eating now I struggle to get anything down can not face big meals just eat whot you can when you can snd make shore you eat befor you take your tablets

MintTop profile image
MintTop in reply to Hidden

Yes, I know what you mean, I just wanted to eat sweet things all the time. I'm eating little things whenever I feel hungry and I go to my mums for dinner, at least I get a decent meal.

I just find sweet food more appetising and I can't face savoury meals. I've got some protein shakes too.

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Hidden

Wish you all the look with treatment and hope your clear of the virus very soon

MintTop profile image
MintTop in reply to Hidden

You too, week 3 quarter of the way through πŸ˜€

life is not good sometimes i also have acute Crohns disease.

oncesunny profile image
oncesunny in reply to Fidget1968

I feel you, but mine is ulcerative colitis, luckily at the time being not in a flare. Last flare lasted so long!