New diagnosis but experienced before - Hepatitis C Trust

Hepatitis C Trust

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New diagnosis but experienced before

Kaz1959 profile image
3 Replies

Hi just been diagnosed not new to this as my late husband was diagnosed many years ago ..he died 9 years ago from.post transplant lymphona I have had many tests in past and its never shown up and now suddenly I have this ..I am in shock what can I now expect my GP has already referred me to a specialist..and I have an ultrasound next week I know treatment is better now..what am I likely to be offered in wat of that please

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Kaz1959 profile image
Kaz1959
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navigatinglife profile image
navigatinglife

Hi, sorry to hear your news, good that you have tests so fast. I was diagnosed and am still awaiting treatment. Some get it quickly, type of meds vary too dependant on what sub type etc you are. So many factors involved. I felt at first frustrated at having to wait so long and being pushed away. But I have used that time on research etc, basically treating myself as a whole person until I get nhs meds. Told I will be on MAVYRET but nothing as yet. It is very new drug from US so not much known. choice of meds & course duration varies. I hope you get yours soon, sure you will. Keep us posted. It keeps me going knowing others are being treated in the hope 1 day I can join them 😁😁😁

Kaz1959 profile image
Kaz1959 in reply to navigatinglife

thank you for your reply I dont understand how I could have it or how it could have been missed for so long as I was tested many times so today I feel angry ...yesterday was sadness ..I just spoke to someone on a helpline which did help a lot ...he has advised I need to get a fibroscan so next stop is back to GP hope you get treatment soon xxx

navigatinglife profile image
navigatinglife in reply to Kaz1959

Same here, symptoms 10 yrs, they think maybe since 1989, caesarian, I was so shocked. Panicked, cried. The works. I knew nothing about this disease, maybe something kicked our hidden virus off. I had sinus surgery last yr, pretty gruesome so maybe that. I try not to think about it. I take each day as it comes. I had a fibroscan 2 wks ago. nothing since. Bloods take 6 wks here to come back so am in limbo. best wishes xx

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