During a short stay in the Horton, Banbury, and a subsequent long stay in John Radcliffe Hospital, Oxford, in September (where the staff are wonderful, friendly, caring beyond belief, professional, knowledgeable, lovely, and incredibly skilled), it was discovered (and confirmed) that I have Brugada syndrome… – something that explains previous bouts of syncope, etc..
I’ve pretty much read my way through everything I can find, medically, but I have a few questions re the finer details of living with it… – and especially the S-ICD which now sits beneath my left armpit.
• How soon, if ever, do you get used to/forget that “S-ICD which now sits beneath [your] left armpit”? If ever?
• What do you call your S-ICD? Mine is currently “the/my box” – basically, because that’s what Julian, my specialist/surgeon called it!
• Finally (for the moment): how does it affect your sleep; and how do you cope? After 58 years of sleeping on my left, I have been sleeping on my right, of course… – but using a short bolster to keep my left arm raised, and thus away from “the box”. This sits between my partner and I; and is something of an encumbrance… – but I now struggle to sleep without it!
Thank you in advance for your help!