New to SVT: Hi - I am new here! I had... - Heart Rhythm Diso...

Heart Rhythm Disorders Support

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New to SVT

Gemmahunt25 profile image
6 Replies

Hi - I am new here! I had my first SVT in January, it was so scary I called an ambulance had a lot of checks but all was clear. Since then I have had 2 or 3 every week and 2 more A & E visits with no diagnosis and all results clear. My doctor in April gave me a 24 hour ECG monitor which was sent to the cardiologist. The cardiologist said it was likely to be SVT and that it didnt need treated. I explained to my doctor that the palpatations I am getting I can deal with now I know they are not life threatening but the other symptoms (Dizziness, fatigue, blurred vision, nausea, difficulty swallowing, breathlessness, headaches etc) I cannot cope with. He said the normal treatment would be beta blockers however as I have Asthma I cannot have these. I feel really alone with this my doctors is one where you get a telephone consultation so I dont feel like I am having any continuity of care for something that is really affecting my quality of life. Does anyone else feel like this and is there anything I should do myself to try and ease these symptoms. I am a full time working mother of 3 children and it is really starting to take its toll. Thank you :)

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Gemmahunt25
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woodstock1 profile image
woodstock1

Hi there , I too was diagnosed with SVT in January and like you ,once it was diagnosed I had a telephone consultation with an arrhythmia specialist nurse (who was excellent and answered all of my questions). I was given 3 options, manage the condition, take drugs or consider ablation. I decided to manage the condition by carrying out the techniques recommended related to physiological manoeuvres (Valsava). I too have asthma and there is a medication called verapamil which is suitable for asthmatics . Id discuss the techniques of managing our SVT with a specialist nurse and the possibility of Verapamil with your GP as this may help with your associated symptoms, although I am no Dr!! Don't feel alone, there are hundreds of people in our position, its  just adjusting to managing it which takes a while. I am sure your GP can help with the associated symptoms if indeed they are connected to SVT (which they may not be I guess).Stay strong, you will find your way through this.

dottie63 profile image
dottie63

Hi Gemma,   SVT,  it is so unpleasant and can be very frightening to experience, so I know how you are feeling. I have had it since 1992, it doesn't get better or 'go away'. I have needed medication, and take an anti-arrythmic, by the name 'disopyramide' (rythmodan retard), Beta blockers just didn't work for me, but I am sure there are alternatives,  as there was in my case.

Mine is well controlled, but without the meds I would be experiencing all of the unpleasant symptoms which you talk about. I certainly can't manage it without the meds and for the doctors to suggest that you do, when you are having several episodes a week, is, in my  opinion not an option. Get a second opinion, see a different cardiologist.

Best wishes, Dee.x

Hi, I know exactly how you feel. I've had tests a month ago and I'm still waiting for the hospital to send the results to my doc.  I know its nothing serious but it doesn't stop you worrying and I just wish someone would take the time to sit down and talk to me. I'm just waiting for paperwork.

But honestly everyone is right, it is just a case of getting used to the idea of this is something we have and changing our routine.  It all feels a bit strange at the moment but it will get better. And don't be afraid to keep ringing your docs to ask for help whenever you need it.

Lucy76 profile image
Lucy76

Hi Gemma I have Svt too and have had  two very scary episodes since last September . I understand how you feel about how it affects the quality of your life . I'm waiting for an appointment to see a cardio electro physiologist at the moment who hopefully will be of some help . 

It's not easy but I would push to see a specialist in heart rhythm disorders it sounds like you haven't at the moment had many investigations such as a 5 day heart monitor and echo heart scan which I was given after my first Svt . 

It's not acceptable for you to be left suffering all those symptoms and not to be referred to a specialist for further support . Wishing you all the best in the future .

stargazer61 profile image
stargazer61

i'm not a complainer by nature - but surely there is something we could all do to alert somebody about this lack in continuity of care can make our conditions - our lives - much worse than they need be? Arrhthmia nurses or inbetween people seems a smart idea. Can we not petition or pool our experiences somehow - i have just been through one of the worst times in my life - and i've had some bad ones believe me, all because i was not given sufficient advice or options. Do anything you can to feel calm, my background was a slow heartbeat from youtube for months, anything in the world that makes you feel good is essential - and gather knowledge. Feel free to pm me if you need anything i can help with, and get plenty hugs from your kids! All the best.(fellow svt, one attack nov 2015, ex tablet taker, 'seeing how it goes')

MinnieMinnie profile image
MinnieMinnie

Hi, I would recommend you to push for another doctor to get better care. If they look for SVT, one day of monitoring is nothing. I was under private care and I had monitor for 5 days. 

I moved away from England and discovered that in other countries they sell slow release Beta blockators. They are life savers. You take a tablet in the morning, and all day long you have the same level of protection. No side effects at all. With normal Beta blockators I felt bad, they did not work for me at all and I got a lot of side effects. I don't understand why in England they don't offer slow release tablets... but ask your doctor to try. I take Metoprolol slow release 50mg made by Sandoz factory in Denmark.

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