Please can anyone tell me whats going on. It's 3 year since brain hemorrhage.This year I have been having lots of problems with eating. I can't eat much at a time 3 mouth fuls is way enough. My daughter gets annoyed i know its only because she is worried. I am loosing weight
My taste has changed now, sometimes things i try to eat taste weird and i cant eat it.
I like tin salmon sandwich. No not good. I went out for lunch one day last week. I had crispy chicken starter, not good. This at a very good restaurant.
Last night I said I fancy a Chinese meal 😋 takeaway
No i could nt eat it taste weird. My husband has same dish, he ate it all.
Anyone else having same problem
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Notts22
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Hi Notts. My taste and smell issues started a few weeks prior to a brain haemorrhage. Red meat suddenly tasted vile and my favourite perfume smelled so rancid I returned it thinking it was contaminated in some way.
After a year or so of trial & error, I'd learned what to avoid (all red meat & tomatoes) and what was enjoyable (chicken, fish, all veg., avocado, chick peas, nut roast etc.). My greatest losses are tomatoes, and the smell of garden flowers!
But my appetite hasn't been affected, and I wonder whether you've talked with doctors about this, especially since your loss of appetite is causing weight loss.
Thank you Cat3 I have found this problem so upsetting. So thank you for taking time to reply.
It is so difficult to get to see GP. I have an appointment with Gastro dept. soon.
I am seeing Neuro team next month so hope they can help. I have noticed twice I had taste problems were eating my favourite meat, chicken taste horrible.
Thanks again I will keep a log of what affects me.
I have to say, I felt really troubled once I realised it could be a permanent loss. I remember thinking . . . what ? -no more fillet steak with french mustard ; no more cottage pie, or lamb chops with mint sauce ?🥺 But I rarely think about the changes now.
I just hope you'll get the help you need to, at least, reach a fair compromise on appetite (and on enjoyable foods).
Hope there are better days to come for you m'love . . . x
Yes Notts, my neuro consultant said the distorted taste/smell isn't unusual prior to brain disorders.
I'm far from veggie, although I do enjoy a beanburger or nut roast ; with the right seasoning, they're the closest to 'meaty' tastes.
And I like fresh white fish, tinned tuna, roast chicken (and oddly, pork sausages and bacon are fine). It's really strange as these taste just as they always did, whereas lamb, beef and tomatoes are disgusting.
But I think your priority should be eating anything nutritious that you can tolerate m'love..
Keep us updated on what the neuro folk come up with won't you ? 😐 x
thanks Cat3 I have been talking a lot with one of my friends. She had brain bleed many years ago so knows what we are all going through.
she said same as you eating anything nutritious, only small amount about 6 times a day. That is because I can only eat very small amounts at a time. I just not interested in food.
Yes I will def keep you up to date on neuro comments
Oh I hate it when you're geared up for an appointment only for it to be cancelled. I hope they've offered you another (timely) Gastro appt ; it sounds like you need all the help you can get right now m'love.
I think you should urgently msg your gp saying you have symptoms which may be consistent with an imminent brain haemorrage and can't get an appointment - it might not be that but I think you should do it anyway, It sounds as though you need an urgent assessment. Not to panic you - but worth doing.
The gastro consultant will be looking for a gastro problem. Spell out to him her at beginning that you have had TBI and that you read that your probs may be consistent with a imminent brain bleed. Say it might not be but you want that excluded.
I had a TBI in childhood and ended up with Bell's Palsy so I have weak senses of smell and taste, which I feel has gotten worse over the years. There was a time when I also ate only out of necessity to keep me alive as I lost interest in eating. Likewise, my wife sometimes asks me why I don't eat fruits, etc. (I don't eat much, perhaps since I can't smell or taste much). Sometimes, I need to ask her if food has gone bad as there was a time I was eating food that had gone bad but only realised after noticing some slight colour change so she smelt it for me and found out it went bad.
If its any help, there's a charity, fifth sense, which provides support for people with smell /taste impairments. There's also a spokesperson on Instagram who goes under the name "smell you never". I hope they can provide some support for you
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Anosmia
Does anyone have advice on getting Smell & Taste back!?!
Do you have this or have heard of this?
Loss of sense of taste and smell.
