He had a review at the hospital

[Skallagrigg]

And finally I know what part of his brain was damaged, he damaged the following lobes,frontal temporal,occipital parietal not actually a clue what that means but they are posting me the report, so hopefully I,ll learn if he can be fully cured or not, and then deal with it

[Kezza72]

Hi, the damage to the different parts of the brain can effect different functions. Frontal temporal could effect a persons personality, learning, hearing and emotions. Occipital parietal could effect the vision and language. But even if their is damage in those regions it doesn’t always mean there with be a significant deficit. I have been an ICU nurse for many years and my daughter (22) suffered a severe brain injury last year. Despite having an infarct (stroke) in her occipital area her vision is good. I’ve seen the infarct in the CT and MRI and it’s a big area. Initially she had vision problems. When she was woken in ICU she couldn’t see but things improved and now she has little deficit. She has good language skills but struggles to read at times. She looks at a word and nothing comes, her brain just blanks. So it is likely she has some damage in her parietal area. What I have noticed is she can get emotional over the smallest of things, she had frontal lobe damage. Recently she cried her eyes out because our local post office did not have a DVLA form! My ICU consultants/colleagues thought she may not survive and they are amazed that she has and how well she has come through it all. The brain is such a complexed organ and each persons recovery is different. Maybe my daughters young age and brain plasticity has something to do with how well she has done? Even over a year later she is improving but then also new minor deficits come to light. So even though you’ve been told the areas of brain damage please don’t think the worst, give him time x

[Angech in reply to Kezza72]

Hello! I hope your daughter is progressing each day! Have you seen cases where ppl can't open their eyes after ca? My sisters mri says generalized ischemia. She blinks 1x yes and 2x for no, but she can't open her eyes. Sometimes when the nurse opens them she squeezes her eyes like she is in pain. The light has always bothered her. I need to get her help but don't know how. She is in nh.

[Waitingfor]

Hi Skallagrigg, yes like Kezza said damage to different parts of the brain seem to affect different things. My partner suffered occipital lobe damage and he struggles with his vision, but he didn’t have much frontal damage. You can do some googling to see what different areas do. But do remember, everyone is different and the brain doesn’t really seem to be a well understood organ, compared to say, the heart. My partners damage was global but he is able to have a full conversation, do different daily tasks such as brush his teeth, eat etc. However he requires a hoist and as stated his vision is bad-it just seems to vary so much person to person, there were many experienced medical professionals who thought he would not progress much past a vegetative state. Keep well xxx

[Pairofboots]

Hi Skallagrigg, there is quite a list of probable difficulties, but, as has been said, everyone is different, try to concentrate on moving forward, the journey isn't necessarily the destination.

[Skallagrigg]

I,m waiting the assessment report before I do anything, and I,m not googling lol jeez that can produce scary stuff, it's just good to know what was damaged and let's see what now, but yes that could explain his vision problems

[cat3]

Each brain is unique so maybe no point in fixating on possible issues until symptoms become apparent, and even then there's scope for ongoing improvement.

Early on, my family were warned I might need lifetime care, but despite the leftover issues I manage ok alone. When all's said and done it's still down to wait & see. ......not easy for loved ones I know m'love. Take care S, x

[sealiphone]

It's a antiquated idea that a brain function is purely located in a specific area, so my frontal lobe damage causes visual problems.

I see your son is around about the 6 month post injury and this is very early to know what the long term effect will be, it's said that a minimum of 12 months is required to rewire the brain after such a traumatic event, in my case it was around the post 2 year point when my symptoms stabalised.

What should happen but frequently doesn't, is a series of tests to identify the loss of ability due to the injury. This will depend on your particular location and funding for a brain injury service they can also offer advice on coping strategies.

[New_beginning]

So many survivors on here, many different experiences and I'm grateful for them bringing insight and hope when health professionals dont give answers and reports are upsetting.

Your son will recover best to his ability, at his pace it will be long road either way x

[Skallagrigg]

The one thing that has changed is his voice, in a good way, he used to be the fastest talking scouser in the world, I used to have to tell him to slow down and speak proper, now he speaks slower he doesnt seem to have much of an accent and hes very polite, lol

[New_beginning in reply to Skallagrigg]

Believe in time speech and word finding may improve. After a tearful meeting yesterday with BI team, found myself reflecting this time last year I was teaching colours, animals, and vehicles to my husband, part of toddlers evening routine, he read 'Guess How Much I Love You' this evening whilst bath running, first time he has been able to do (14mths).

It's only writing this now, reflecting still from that horrid meeting I'm actually recognising positively on recovery (protective of criticism from yesterday), helps no behaviour issues today to just think clearly, many hurdles to go but speech does get better from what I can only speak from our experience and comparing to last year. Mind no stroke symptoms since mid January 2021 as speech goes slower with those episodes.

I hope some answers with treatment with your husband too x

[Skallagrigg in reply to New_beginning]

Thankyou, his dad is out of hospital and fine,my mum went to visit my son today,first time,emotional for both of them but as they are both on medication and in wheelchairs they compared notes too lol,it is a slow but sure journey,

[New_beginning in reply to Skallagrigg]

Glad some positive news on your husband and lovely his nan visited him and they had a laugh, hey if the wheelchair comparison brought laughter and he still has his banter ways hes on a good path, more familiar faces, more talking lol that scouser accent with speed will come in time x