Quick update.: After getting the appointment for... - Headway

Headway

10,846 members13,066 posts

Quick update.

Marnie22 profile image
5 Replies

After getting the appointment for next July for neurological rehabilitation, I have now spoken to the following: Two different PALS services; local Healthwatch; NHS Improvement; NHS Foundation trust and they all have different answers about getting it sorted/ being offered an alternative hospital/complaining.

I then spoke to the secretary at my GP's. She is forwarding my email to my GP and she has said that he will try and get me an earlier appointment.

Been in floods of tears.

Just feel no one gets how hard it is day to day. It seems no one cares.

Off to see my psychologist in a bit - what happened in hospital nearly four years ago left me with PTSD -took over two years to get that diagnosed. At least the lady I see is actually nice.

Apologies for ranting on.

At least I have my local Headway Christmas meal on Friday.

Written by
Marnie22 profile image
Marnie22
To view profiles and participate in discussions please or .
5 Replies

Good luck and enjoy that dinner.

cat3 profile image
cat3

Thanks for the update Marnie. But please do bear in mind that there's a limit to how much improvement any form of rehab can achieve. Any brain injury leaves lasting issues which we need to acknowledge and accept as our new norm. Respecting our limitations by avoiding certain environments and resting when the need arises, can help to reduce the stress of frustration.

Build on what you can achieve and try to laugh at what you can't,,,,,

Be kind to yourself m'love. x

Marnie22 profile image
Marnie22 in reply tocat3

I do realize what you said, but I think I should at least be assessed and have a chance to see if I can make any improvements. My physical health has suffered because I haven't been able to manage the severe fatigue and I know OT can advise on that. I just want a chance to get a little bit better.

cat3 profile image
cat3 in reply toMarnie22

Absolutely Marnie. If I recall the Bi mantra correctly it's (more or less) 'Keep testing your boundaries whilst respecting them '. 😏

Good luck m'dear….. x

Marnie22 profile image
Marnie22 in reply tocat3

Thank you.😀

Not what you're looking for?

You may also like...

Just a quick update x

Victoria saw the doctor yesterday and he has put her on a low dose anti depressant for a couple of...

Update

So it's almost the end of month 8 from date it happened, in recovery, last two months haven't...

Newbie Advice!

Hi all, This is my first post here. Hope you don't mind that it's a long one, but I wonder if...
bugsyroo profile image

Cranioplasty update

Morning, Sorry I haven’t been on for a while. It’s taken a little bit longer than planned to get...
Catperson18 profile image

There was an old lady...

There was an old lady who swallowed a fly. OK, I'm 39, and I'm not so much swallowing flies, as...
Gaia_rising profile image

Moderation team

headwayuk profile image
headwayukPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.