Aftercare

[Gym1bunny]

When you have a brain aneurysm why does the aftercare suck !! Everything takes so long and your left to right for help if it wasn't for my partner I don't know where I would be to be honest I don't think I would be here now !! It's just one battle after another perfessionals don't corrispond with each other I had a brain scan in may this year and still got no results !! I had to leave my job I suffer with awful anxiety fatigue my life is like it's stopped I'm worried si o what I'm going to do I so want to get a job but with my anxiety and mood I don't know if I could cope it's very hard I've worked for over 40 years non stop never been out of work people just don't get how I feel I'm so lost I'm putting lots of pressure on my partner which I feel so guilty about I just blow up out of nowhere I get so annoyed with people and situations I tried CBT that made me more anxious I've spoken to my doctor but to be honest he looks at me with a puzzled face and got no answers does anyone else feel like this ? My head is banging all the time and I've got a constant like pulse rushing in my head it's been 16 months since my BA should I be over this now ? I'm so down in the dumps at the moment my friends have dwindled away .I have talking to people I was always a socialble person now I avoid social situations

[cat3]

Bunny, the more you stress about the changes and losses in your life, the worse your symptoms and state of mind will become. As discussed previously, our only reliable course of action is protectiveness towards, and acceptance of, who we are now , post BI. At 16 months you're still in the early stages of finding your full potential. For me it was around the 3 year point where I felt I'd reached my equilibrium although, 7 years on, I've seen more improvements in memory/mood & various abilities along the way.

Until you accept your new self (deficits - loss of employment - and all) you'll be tormented by 'what was' and keep on delaying who you 'could be'. Keep a list of daily achievements on which you can build, then look back to see how far you're progressing and, hard as it is, stop looking back. I had to insist on a referral back to the neuro-consultant after 18 months ; I see him every 12 months and he's organised various scans, tests and therapy along the way.

There's no denying it's hard-going after a brain injury and I really do sympathise with your daily struggle m'dear. But the lack of aftercare is SUCH a common problem ; most people here have had to fight for any help they've found. I've learned to accept the headaches, memory issues, impaired mobility, tinnitus...……...etc., as par for the course, but still feel grateful for my life-saving procedure and to the surgeon.

I tend to live in the moment owing to various health issues and, if really down, take myself off for a 10/20 minute walk to find perspective, rain or shine. The simplest activities are often the most effective. Take care Bunny....I hope you'll find help soon. x

[Gym1bunny in reply to cat3]

Thank you for your words of support again I'm trying to move forward and I know I've moved forward in slot of areas but at times panic and anxiety takes over and consumes me ! I've rejoined the gym at the moment I can't do the exercise classes but I'm swimming two to three times a week which I enjoy and makes me feel alive again I walk every day rain or shine ! I've just got to sort out this anxiety and panic I'm seeing a neurologist next week so fingers crossed that will help That you again

[cat3 in reply to Gym1bunny]

I've had anxiety/depression issues since childhood but was lucky to find an efficient medication 20 years ago which has helped massively for getting through illnesses. Mental health still isn't properly understood or dealt with successfully, but I hope you find you own way through m'dear.

Good luck with the neuro appointment. x