Hi, I'm starting to unravel the next steps after being diagnosed with PCS, elements specifically highlighted are: information processing, attention, memory, extreme light sensitivity and visual problems, auditory issues and sensory overload.
I was told to accept that these were going to be permanent and that I would be a patient of the brain injury service for life, no referral is needed from a GP if there are any problems, just phone direct and help is at hand.
The CAB are now helping me to sort out debt, finances and housing to get a secure platform to 'work' from.
Have sorted out limited advocacy help, non legal.
Have had information for legal help by a funded solicitor who can help if are a permanent patient with disability or mental health issues. will contact them soon.
So now I'm waiting for a GP appointment to round up all the medical info (got nerve and muscle damage also that needs surgery, MRI's and conduction studies are, done going next week to see the surgeon)
So I know what's wrong, PCS, will be getting fixed physically also and now I wondering what happens next.
Does the GP make further referrals to help with issues like learning to deal with life etc, like how to get the most out of life, I suppose that's occupational therapy. Writing organisation and visual memory is a very strong point for me, along with mental flexibility, while everything else is a mess. So I need to adapt I imagine to use these strengths to take over the messy parts and adjust to life via that process. Verbal and written information is bad along with my verbal response, these are the bits that don't compute. How do I try to improve these, who would help with this?
On top of this light sensitivity triggers visual distortions like moving patterns and warping buildings and rooms etc which leads to a panic response in my body that results in blacking out if I'm exposed to direct sunlight, LED and fluroecsent for too long. I'll get help with this once I can find the money, behavioural optometry, it's non NHS.
I'm thinking along the lines soon of experimenting with neural reconstruction via meditation coupled with art therapy for information processing. Like building a bypass in the brain for processing problems and building new memory patterns.
I've just realised what I'm doing here, it was pointed out to me the other day at the CAB, I can't make decisions in thought or verbally, so I'm writing down my thoughts because they make sense if I write them out to someone else. This is what the psychologist was trying to explain. She said write and keep writing everything.
I digress, oh dear, this is great
any thoughts would appreciated
Thanks