Not happy 😟

[Tgirl79]

phoned neurologist today, gotta wait 15 wks for hubbys appt, apparently its not urgent so just gotta wait for routine appt, I've already been diagnosed with anxiety, and now hubby is getting anxious, we cant live with this uncertainty for that long !!!!

[Shon48]

I’m sorry to read this. Until I had my aneurysm diagnoses I never gave them a thought. My first procedure I met a lot of people having theirs clipped. Mine was too big and in a bad place so had to go through the groin to be coiled etc. Then three months later had to have another procedure to have a second stent put in . Really suffering after that one and as it was such a rare procedure I too thought I would have had a follow up appointment well before December but no 13th December for mine . I think the hospital is so busy and I’m still alive (risk was huge) which has in turn a waiting game for follow ups .

Although I don’t like my new self , I have stopped worrying about silly things but it’s a learning curve for all my family who live with me . I wish you happier days and help when you go to the appointment.

Shona 🤗🏴󠁧󠁢󠁳󠁣󠁴󠁿

[cat3]

I remember too well how isolating it felt being discharged after 2 months of cosseting in hospital, with no one to turn to apart from a 3 month follow up appointment and a clueless GP. After 12 months I had to pester my GP (who assumed that discharge after a brain bleed means the patient is 'obviously better') ...….for a referral back to the neurology team owing to the onset of hormone disturbances.

It was another 12 months before I got to see a consultant & had the relevant tests and I now have a follow up appointment every 12 months...……..things move SO slowly, though that might be deliberate as brain injury rehab/progress is invariably a long, drawn out affair often needing 2 to 3 years of healing and adjustment.

Have you talked to Headway via the helpline (0800 800 2244) and asked for printouts giving the facts regarding after-effects and coping strategies ? If not m'dear I'd recommend you do so. Wishing you both courage, and better days ahead. Cat x

[Angelia1234]

Holy cow ! Our wait is 2 months and im frustrated with that. Apparently theres a need out there....

[SAH-survivor]

Hi Tgirl79

If you want to be seen earlier, you can contact the consultants secretary and see if they hold a private clinic. This does mean you have to oay for the application but it’s worth the £150 if you are feeling really anxious. I did this as wanted the go ahead to fly.