Extreme fatigue

[Kavib]

Happy Saturday, please follow the link to watch video- extreme fatigue after SAH

instagram.com/p/BqRY8MGHWr4/

[Lann62]

Oh thank you Kavita, your post has so reassured me. I had my SAH at the end of 2015. I no longer work and have had an amazing recovery thanks to the wonderful staff in the NHS. The nurses, doctors, physios, psychologists and most of all the first responders who apparently arrived at my house and were able to intubate me and give me oxygen straight away, hence I have not got many of the difficulties with mobility etc. I am so thankful and so very very grateful to them all Also my wonderful family who were there caring for me and putting up with my moods. I have finally got my driving licence back and that has been brilliant knowing I can get about, however Im now very good at getting bus connections! I try and go every week to help out at he rehab unit in which I had been a patient. I hope I am of use to someone. One thing bothers me however, I find the better I get at times the more down I feel as Im unable to run around and juggle the many things I did in the past. I know everyone says stop looking back, easier said than done at times. As I am no longer at work I don't have the regularity of going somewhere everyday. It feels at times the more improved I get, the feelings of being down resurface as I focus on what I use to do. I know I should not focus on the pass, everyone tells me that, but easier said than done at times. Eventually the feeling pass, the next time. I want to do more with my life but can't find the courage. takes me ages to make a decision and often people don't understand. I managed to do my very first flight out of the UK last week. I was so anxious about the whole thing, and exhausted for days afterwards, but I did it, it was like a climbing Everest feat for me. At times I feels so useless and that I am not doing anything useful or worthwhile with my life, its awful when I feel like this and takes a while to shake off. This change in my life has been so hard to get use to. Thank you for your post, it was so helpful and reassuring to me. Lann62

[Kavib in reply to Lann62]

Hi Lann,

I can relate to each and everything you have mentioned here. I’m exactly the same and working full time which leaves very little time for me to do things at home. It’s great that you have a good family network as that really helps and just let someone else take some of the responsibilities it’s your turn to look after yourself. I put lots of tips and stories on my website kavitabasi.com and hope you get a chance to get my book I’ve done this to help others in recovery: Room 23 : surviving a Brain Hemorrhage link here

amazon.co.uk/Room-23-Surviv...

[Kavib]

I went back to being a Vice President in a fashion company. It’s demanding and fast paced and it was a huge challenge and struggle in the beginning. But HR really helped support me especially with phased entry by week .

[Cj-195]

Hi Kavib. Lovely to hear that you enjoy your time in tat(?) Park. It'seems beautiful park. I suffer with fatigue. Do you have a headway group? X

[Kavib in reply to Cj-195]

Just on here x and being out in any nature parks are good for recovery .