So the doctors came in to speak with me because I was concerned about Tony's sugars being so high since he's been on the liquid feeding and they said they wouldn't change the food but only give him more insulin. That didn't help me. Then I find out the new speciality care place we submitted to insurance and even did a tour for yesterday, that we were told on Friday was just waiting for approval, was denied. Simply because to them Tony hasn't made progress. I even mentioned the videos of Tony tracking with his eyes, holding my hand and him crying and sticking out his tongue on video.
I'm really said right now and had to hold it together while all three of them were staring at me and telling me this in his room. I refuse to send him to a nursing home and now this fell through. I'm very upset and now having to even deal with the other place who is ready to discharge my gran next Friday when she doesn't even eat enough to maintain her nutrition. I'm very scared and stressed and sad.
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HopeforTony
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I'm so sorry Armani. There's nothing anyone can say which is helpful or reassuring right now is there ? But I guess it's possible Tony can still make progress with encouragement from you and his dad wherever he is. Are the doctors saying there's nothing more they can do for him ? xx
Well to be honest they come in ask him to squeeze there hand and that's it. I provide the physical therapy of his limbs, and exercise his hands and put on his splint as per physical therapies request since they don't do it as they should. But I play the music, talk, I've asked him to do things because it seems he responds to me more than anyone. But to them if he doesn't squeeze a hand it's not seen as much progress. I think that's too hard personally but I know there is not much anyone can say but I believe in miracles and I will continue time to pray ans hope for the best, just wish he was sooner. Thanks for the sentiment as always
For what it's worth m'love all my family have been rooting for you both, so lots of positive & hopeful vibes should be coming your way. Thinking of you with much love, Cat xx
Just to let you know that we're still thinking of you, Tony and his family in our prayers and thoughts 24/7 and send you all our love and hugs as well.
Amanda is still in a coma and she's showing good signs of improvement especially when she squeezed ours and one of the nurses and doctors hand an hour ago.
We're still thinking of you, Tony and his family in our prayers and thoughts 24/7 and send you all our love and hugs as well.
This is hard to know how to advise you as to what next as I think you are in the States as you mentioned 911 before and insurance for health care. If this is the case how does insurance work and what does it cover, over how long roughly? Xxx
Hi Armani, I haven't posted before but have been following your posts and praying for you and Tony (and your nana).
Assuming that you are in the USA and obviously things are very different from the UK where we have our wonderful NHS, can you appeal the Insurance Company's decision?
Could your Congressman/woman help you? Write to the CEO of the Company.
When we needed a support package to bring my son home we were refused funding via the NHS as his needs were not totally medical (he has a learning disability pre accident) and we were reliant on the package from Social care whose budgets are stretched to the limit. I wrote to the Director of Social Care and involved my local MP (equivalent of congress person in the UK) and basically was a pain in the butt until we got what Josh needed.
Don't give up, Tony is making progress and needs the best possible follow up care which you pay for via your insurance.
Yes I just finished writing the appeal now. They said it was based on lack of doctors notes which make me upset because they come in once in a while to ask him if he can squeeze their hand and then they leave. I do not believe they have been doing their due diligence. Since April 5 th I've managed to get him to stick his tongue out, squeeze my hand, cry and more. Thanks for the advice. I will look up that information for US ALSO. XX THANKS SO MUCH
Hope things are a bit better 2 days on? It’s so hard when the bad days come. My dad didn’t wake up for me when I saw him on Sunday but was super awake yesterday when my husband visited. There’s talk of his operation now being delayed. Some days are just crap and hard to handle. Sending love xx
Sorry to hear that. Actually after writing appeals I got there late to find out they moved him which was shocking and nerve-racking. Then when I finally found him the way they had him laying in the bed angered me because it looked as if he wqs just thrown there it was bad. But the appeals go out this morning so we shall see what happens. I hope your dad wakes up to you again. And thanks xx
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Feeling exhausted, 
Lost My Dad
Family and not caring.
Newbie feeling lonely and abandoned at xmas
