Headway

Further info re My Son

We are still waiting to hear if and when my Son will be moved. It is now over 3 weeks since it was decided by the professionals that the hospital rehab place was no longer suitable for my Sons needs. He is still waiting to hear next steps - despite the hospital he is in being desperately short of beds, they were in the daily papers 10 days ago for having to redirect patients to other hospitals and the doors closed to even emergency’s. The problem is no individual ever takes responsibility. Trying to get answers is “trying to pull teeth” we have still been given no answers to our questions, our MP has been virtually ignored. The place that we were lead to believe my Son may go to in the North West, and who we have expected to hear from any day to say they accept my Son, told my daughter on the phone yesterday they were not aware of my Son, now how on earth does that happen if everybody is doing their job efficiently? This whole saga is a mess, but eventually the whole sorry tale will come out, I have made that a promise to myself.

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A saga for sure. And what a slap in the face to hear that, all along, nothing has been happening. Do they even think about the heartache they cause ................

I really hope your patience & determination will be rewarded before too much longer Cotton, for both your son's sake and yourself. xx

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Thank you Cat. It’s just unbelievable what really goes on!!

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Communication I found in rehab and even discharge, with my partner, was not the best, which was a shame, as the staff were great otherwise. I hope you get where you need to be, with your son soon, keep pushing as best you can x

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hey sorry just quickly because I have to go out in a second:

I was transferred 4 months and a bit later waking from my coma to Walkergate Park and the rehabilitation style/method there was pretty extraordinary and the team there are so 'real' and normal with family members and patients so I couldn't praise that place more.

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Ok - my friend/neighbour just texted to say he's running late so that gives me some time to write more than I did ^

At Walkergate Park I had my own generously sized room and because I actually have obsessive compulsive 'disorder' <----- hate that word, I was able to keep my room + private ensuite bathroom clean and spotless at all times.

When I first arrived - I was still in a vegetative state so I was bedridden with my catheter, unable to stand etc so I was accomodated beyond belief and transferred to and from the bathroom on a chair that mechanically moved me across the room safely suspended.

After I don't remember how long in months-terms, I learned to speak a little, feed myself, go to the bathroom myself etc so my catheter was taken out (I now have a hole so big in my pecker, you could park your van in there) and I was in dedicated rehab segments almost every single day so speech therapy, physio (I was wheelchair bound for a long time and even when I left), swimming (more like an embarrassing paddle lol because at this point my left arm was totally dead), games with others hour like cards or because I've always loved playing it - chess with my new found friend Brett with MS and just a host of therapy + fun activities.

I was never ignored and I only hurt myself once while there resulting in a rush to hospital in Newcastle (RVI) to see if any injuries existed. A new girl from Africa started working my wing and she wasn't experienced enough to take care of patients like in second nature so she mistook the needed steps for showering and forgot to strap me in so I tried to stand to shower all confident and confused and I fell hard.

Besides that though - everything else went really really well and exceeded expectations.

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I send so much hope x

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