post concussion syndrome

[smurf2]

post concussion syndrome , has any body suffered with this for more than 2 years please

[blackperil]

23 Months in with some improvement from the index event.

Started to just call it a Brain Injury and move to acceptance of the new me.

Mainly fatigue, headaches and migraines. I have tinnitus and eye disturbances. Also cognitive impact.

The main feedback from consultations is just to get on with life.

Sorry not answering the question of post 2 years. Are you after some inspiration or help on dealing with the on-going symptoms?

[smurf2 in reply to blackperil]

could I ask please don't answer if you don't wish how did it happen?

[blackperil in reply to smurf2]

Car collision, side impact. No bleed or swelling. My neurologist said that she has had cases of people just hitting their head on kitchen doors.

[smurf2 in reply to blackperil]

don't really know what I'm after suppose find others like me that truly undersyand it

[Clare1929 in reply to smurf2]

I understand. ... I hit my head on edge of concrete wall and it's scary how it has caused so many issues of posthe concussion syndrome

[ChloeES]

I've had post concussion syndrome for nearly 2 years. I have some days worse than others and doctors are now saying it must be something else because it usually clears within 4 months. It is a horrible feeling!! I rest in bed when I have my worst days with it.

[smurf2 in reply to ChloeES]

could I ask how did it happen don't answer if don't want to

[ChloeES in reply to smurf2]

I fell out of a golf buggy, hit my head on the concrete and fractured my skull and had a bleed on the brain and bruised brain.

[smurf2 in reply to ChloeES]

ouch so sorry too hear that , I'm trying to figure out why I have post concussion from no bleed etc just hitting my head on the coener of a van door

[Clare1929 in reply to smurf2]

I had no bleed but gradual worsening headaches, ringing in ears, damage to optic nerve behind eye, balance issues

[ChloeES]

Have you been to a doctors? Post concussion is your brain thinking you still have concussion so you wouldn't need to have a bleed I assume. Possibly due to concussion off bumping your head on the van.

[smurf2 in reply to ChloeES]

my local doctors useless , am under a specisalist doctors see him once a year or so was seeing an occupational thereapist but no more as she says cant help me anymore , just wanting see if other people are there around who live with this condition and how they cope etc

[CuriousConnie]

I still have major / life changing issues and my accident was 11 years ago (I fell downstairs and my head took the impact). I struggle with cognitive issues, emotional issues (especially low mood, frustration, anger), fatigue, headpains, nausea and many more symptoms. It feels like a life sentence.

[smurf2 in reply to CuriousConnie]

that sounds awful I am so sorry , did you have a bleed or anything ? do you work? I cant imagine still being like this in years to come I had enough of it now , I fed up that no one seems to have the answers no cures no help that its not recognised properly

[CuriousConnie in reply to smurf2]

I will message you directly

[Lizum]

I’ve just passed my 2 year anniversary.

[Tortie14]

Took a fall six foot onto concrete, bashed my head got whiplash in 2013. GP ignored head injury got physio for whiplash. Counsellor said I was depressed (wrong). Long story short I realised what was wrong by talking to people here. Forced my GP to refer me to neurologist at NHNN who confirmed Post concussion syndrome. No treatment. GP then referred me to a unit at Queen Square that specialised in cognitive aspects of brain injury and they were great, got a neuropsychologist assessment and some advice about managing symptoms and holding down a job. Biggest issue for me was short term memory issues due to problems concentrating, attention issues, and noise sensitivity. This forum saved my sanity and helped me find ways of coping. Noise issues 70% gone, (still have earplugs always to hand), memory and attention are much better. Count myself very fortunate indeed. It does keep improving though the first neurologist said up to 2 years. Everupyine here encouraged me with stories of improvements beyond 2 years. Don’t give up.