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Brain anrysm

Tomorrow is the day I’m getting my aneurysm coiled. Can anyone let me no how they felt when they woke up from operation I’m so scared. Thank you

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Hi Peppy. I had a coiling procedure 6 years ago but, because I was unconscious owing to a haemorrhage, I was saved the apprehension we often feel prior to surgery and don't remember anything about it.

But I was told by family that, whereas I'd been in agony before the procedure, after returning from theatre I was no longer agitated and resting normally.

As there's no actual surgery involved in coiling (the area for fixing being accessed through a blood vessel in the groin) there's no post-operative pain whatsoever, just a slight awareness of the tiny incision in the groin..................no more troublesome than an injection site.

It really is a very commonplace procedure nowadays m'dear, performed by highly skilled surgeons with sophisticated technology. I have after-effects from the haemorrhage, but I hear that, without that complication, the after-effects are minimised to headaches and fatigue for a week or two afterwards.

You'll be fine, I feel sure ! And please come back with a full account of events when you're over it............though I doubt you'll remember much apart from that welcome cuppa after the anaesthetic has worn off ! All best wishes Peppy, Cat x

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That’s what I like... not to remember much

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Thinking of you today, I'll 'see' you on the other side, and you can come back and tell us about the 'special' compression socks, paper pants, and tea in sippy-cups.

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Thanks so much. Haha. Sounds fun... not. Terrified right now. Got to be in hospital at 8.

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No doubt your there at hospital with those attractive socks on😂but wishing you the very best with it all and look forward to hearing from you when it’s all over... don’t forget I’ve still got mine to come... 😌xx

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Hi quick note to say operation went good will msg u when feeling bit with it

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Oh I’m sooooo made up for you thank you for letting me know you brave thing you ❤️Gather your strength now and chill!!!!!! Xx

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Hope last night went okay and your feeling okay today and will be transferred to general ward today Thinking of you .

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They have sent me home. Feeling rough and hope I’m making sense on

My replying. Feel spaced out on pain relief n just feeling of lost. But I have to say can’t feel anything in my brain. So that’s great

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I’m still waiting for my operation - but good luck you’ll be fine xxxxx

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Thank you.

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Wishing you lots of success and a pain free recovery x

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Very best of luck ☘️

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Just us to go now.... is yours in March? 😬

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March 5th you have joined the forum on Facebook?

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Gosh that’s my Birthday🛍no not on Facebook but can get on it sometimes😌where are you having yours done? X

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Charring cross london opp on the 6th happy birthday for that day. Where are you having yours

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Aww thanks I’m at Walton Neuro in Liverpool (Home turf!) but I’ve worked my way up and down the country in 4 years sooooo scared 😟 but gotta get on with it. Got a good Neuro guy now xx

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Hiya Twicker

Wishing you Best of luck for your op tomorrow.. it’l all be fine. I’m seeing my vascular guy this Thursday now so may not be far behind you !!!

Please do let me know how you get on ... I’m completely terrified🙄🙄🙄🙄😧xxx

Andrea

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Happy birthday Andrea. Hope u have a lovely day! Xx and good luck for your operation tomorrow twicker and a speedy recovery x

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Thanks Peppy

Just a quiet one for me today still got this flippin bug😷. Got my appt this Thursday now instead of 15th!😬can I make an enquiries on your behalf If it’l help your situation? Xxx

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Sent home after 4 hour wait no beds - gutted

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OMG I can’t believe it... you must be well fed up I’m so sorry .. what happens now.??? I must admit with recent events in our family I’m astonished at the NHS bed situation.. x

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That’s terrible sorry to here this.

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To add to this bed situation. That’s why I believe they sent me home the next day after coiling. Still feeling abit poorly x

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You could yes please. Been to doctors again he said it’s my muscle back of head. But how does that course sharpe pain up the back of head and temple. Strain at the back of my eye and pulse like head pain. Also my head hurts when tipping it to one side or bending down. But good luck for you appointment. Let me no how it goes. Take care and try not to worry. I no I’ve suffered but like I said the actual coiling wasn’t as bad as I thought. Xx

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Will defo ask a lot of questions as to what the after effects could be and will mention your symptoms... he’s an approachable guy!! It’s so strange your still having problems... sinus problems can linger because of the delicate membrains but I’ll be asking the questions nevertheless. I’m going this Thursday now instead of next week so will let you know... it’s still good to know also that the actual thing wasn’t so scary.. you’ve still helped my fear lots👍🏻👍🏻👍🏻😌xx

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Hi Peppy

Hope your on the road to recovery. Had my appt today and got my date for op 30 April... I was so scared talking to my surgeon about it I nearly fainted!!! Said I was a wimp!!!

I asked about your complications and although he was vague he said you should certainly be referred back to RVI and it wasn’t a common side effect of op. Said my Annie looked ok for coiling on the MRI and hopefully hasn’t got to be stented. Pre op beginning of April so no wine got me till after op as got to be in the best shape ie good BP. I’ve dreaded this for 30 years since I lost my Mum.

Hope you’ve got some answers and feeling a bit more like yourself now. I just want to the other side of this... xx

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Aww bless you. I no how you must be feeling Andrea and I’m not going to say don’t worry to much because what you are feeling is normal!! But I can honestly say it wasn’t as bad as I thought. The only bad bit which I found in hospital was the waking up bit Bad head and desperate for the loo. As I didn’t have a catheter and also a very sore throat! But I can promise you you can’t feel the coil in your head at all. Thanks for asking for me. I’ve since saw another doctor now I have been told what I have is Trigeminal neuralgia. I’m now on amertypline to solve it. Fingers crossed. So off work another month. Take care. Xx

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Good Morning Peppy

Glad you’ve found out finally what the problem is though I’ve googled it a it’s a nasty thing no wonder you felt awful and I think it can be through having the coiling as it’s possibly the moving around of arteries has created the pressure on that nerve. It can go on it’s own so hoping that for you it could also go I guess when your all healed.

There seems to be quite a few people that have had this after coiling! Was there no sign before your procedure?

I was awake most of the night mulling things over and getting a bucket list together🤗😳going to try and find a way to manage this fear but will possibly contact Headway but have a couple of good reviews on my surgeon and I’m keeping your words clearly in my head. It does help that you found the whole thing not as terrifying as expected. It’s giving over the control thing that’s hard but hot on the websites to find assistance for ‘fear of surgery’ in the next 7 weeks before my op.

I hope you continue to find some comfort and your problem clears up with the new meds.

Let me know how you go👍🏻

Andrea

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Thank you. And I didn’t realise that people had the same as me. After having operation. I can only repeat it was not what I expected meaning wasn’t as bad as I thought.but I totally understand your fears as I was terrified too. The only thing I can say is it did not hit me until last week that I’m fixed. It was as though my brain couldn’t except it was all done. Then after I was back at hospital with thee pain and had a cat scan I then sat down once I was home and thought. Bloody hell. I’m fixed I’m not going to die all of a sudden I had such a overwhelming feeling of thank god it’s over with.... even though I was still feeling this pain. That I never had before the operation! Anyway. Before you no it you will be sorted out. Xx

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I know what you mean must be a huge relief 👌🏻I don’t know how I’ve lived with it for 4 years!!!! Not easy... every day I wonder if today will be my last. I have other ones up there and he’s going to do an angiogram before the coiling (but I’ll be out of it!) to see exactly where they are and how they look but think he’s happy to watch and wait on those. Defo wants this bigger one sorted out though and think he may not have to stent it either.

Just been looking at some NLP therapy to try and get my head atlund the surgery fear but at £195 per hour think I’ll just take some diazepam!!!! Feel ok today it’s on my mind but trying to be positive and think of what you’ve said .., you have helped me lots and really hope you get sorted... apparently it can come on but clear of its own accord just keep taking the tablets👍🏻👍🏻👍🏻😬🙄xxx

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Oh dear I never New you had more of them. Shame he couldn’t coil them all while he is in there. I no what you mean I suffer from gad. General anxiety disorder every thing stresses me out at times. But I’ve been put on propananol which I can either take every day. R just when I need them as they calm me quite fast. Maybe you could talk to your gp about them. I was also allowed to take them the morning of my operation. If there is anything I can do for you to help while you wait to have this done. Just let me no xx

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Aww thanks 🙏 you already have 👍🏻I’m trying to get an appt with my doctor for some help with anxiety so here’s hoping ... I try and be brave most of the time but this is another level. I guess as there’s others up there the worry is for life but he’s not bothered about them as he thinks they’re small but yes would be good to get them all sorted in one go!!

I took propanalol years ago for my high BP but these lots on the market these days.. the menopause tends to send me a little crazy but nearly through it I think🙄so if I’m talking rubbish and acting weird when I come round at least no-one will be able to tell any difference haha 😂

Thanks again and enjoy your weekend with a peaceful mind!!👌🏻Xx

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Hi Peppy

How you doing? Is the pain getting less? .... hope so👍🏻I went to the doctor last week to see if there’s anything he can give me for the stress but he said he didn’t want to give anything drug related as the least drugs in your system prior to surgery the better. Has booked me in for counselling long term.

The anxiety is really awful today... well last few days actually to the point that it’s causing anxiety attack ie racing heartbeat etc. Don’t want to do anything😬

Think hubby thinks he’s got a right crazy menopausal basket case under our roof at the moment and feel like it’s controlling me ahhhh sorry to rant!!!! Xx

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Aww I’m sorry your doctor wouldn’t help you. I took propananol every day including the day of my operation... I have a lot less pain now thank god. But been put on sick again but this time for pain and high anxiety. Like you fast heart rate no sleep and so on. I’ve not been on here as I guess just watching tv n not bothering at all with anything. Doctors thing everything I went through car crash breast cancer scare anrysm operation has just got on top of me. Anyway your will be over with soon thank god

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Yes youve really been through the mill since your scare and the stress does take its toll with some strange symptoms!! Last year I actually went for a couple of ECG’s and got an ectopic heartbeat.. quite common apparently.

Have you considered counselling to work through your anxiety’s? Think it can work as your getting it off your chest.

I know what you mean.. I could have just sat and not moved today.. feel like I can’t be bothered with anyone.. infact I’m driving myself mad going over the dread of the end of April... ahhh... it does help though speaking to someone who understands 👌🏻🙄glad your pains have finally eased. Hope you get some better times soon .. you deserve it x

Andrea xx

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It’s just not nice for u and the waiting. The waiting is the worst I I think. I remember planning and telling my family the ifs and buts if things go wrong it’s horrible. I’m waiting for councillors to get intouch. Xx

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Yes I keep thinking of how scared I am of blood tests... although I’m am half out of it as I take about 3 diazepam but keep realising I must remember it’s not as bad as I imagine.

I took your advice and called Headway they put me in touch with a lady who deals with Head trauma patients and their families. Hopefully I’m meeting with her next week... in the hospital for a coffee, chat and possibly a visit to the ward..., scary but may make me feel more in control of the fear rather that it consuming me. Think it’s a way forward rather than quivering at home. I’m usually a brave person but feel like this has got me beat!!🥊

I think counselling will be perfect for you as youve been through so much all one after the other and the feeling of what ifs and trauma is overwhelming. I think they may just be able to put it into the right context for you so you can move forward. It’s something that our nearest friends/loved ones sometimes can’t do.

Stick with it !! your a brave woman and overcome so much

Regards Andrea xx

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Hi peppy, hopefully all over now, I felt an immense relief when I woke up, knowing my Annie was secure, and I could get on with living, lots of luck with your recovery love Alice xx

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I do feel such a relief thank you x

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Hi peppy glad to see everything went well take care all the best

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Thanks for the update Peppy. So good to hear you're free from that particular anxiety ; enjoy your recovery !

Love Cat xx

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Thank you. I’ve been in a lot f pain up until now. With very bad headaches. Unbelievable sore throat... due to the tube they put down your mouth so been on alsorts of medication... still in high dependencey thanks u everyone who wishes me well... I will be private msg a couple of people when I’m home and I will ring you Tilly when home X

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Good Morning Peppy hope you had a decent night and your throat is on the mend and everything else has settled down... you’ll soon be home. Just wanted to say Hi and well done again👍🏻😌🤗

Andrea x

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Bad night. But headaches have got less now. Dizzy a bit. But I’m ready in pjs and have the go a head to go home today!!! Think I’m abit worried about going home as I don’t feel that good... reckon they need my bed as it’s all I’ve heard nurses say to each other about who they can send home. Hope this makes sense. My brain isn’t with me today c

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Aww was thinking about you last night and yep to be expected coz they’ve been messing with your grey matter... I understand it’s still scary afterwards but they wouldn’t let you go if you weren’t ok.. wow can’t believe you’ve had it done👍🏻👍🏻Howz your groin? Xx

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My groin hasn’t bothered me at all. But maybe once all painkillers go out of my system I may feel it. Also I’ve only got to walk to toilet once. So haven’t had to walk far I will ring you rolly in couple of days to hopefully help u with questions and to just be your support I’m not sure I’m making much sense on here. Feel abit all over x

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Aww fab you take good care of yourself and you’ve done so well must be a massive relief!! Your a little pioneer and yes your making sense👌🏻Speak in a few days when your feeling better but think it’s amazing that you only had it done yesterday!! Xx

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I’m home now feeling awful but at least I’m home. Feeling a little down in the dumps and keep forgetting where I’ve placed things. X

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Aww your bound to feel a bit strange and disoriented... these are the side effects from the procedure... I guess it’s not like going to the dentist but it’s a major thing you’ve had done. Think about how you felt a few days ago and how far you’ve come😌you’ve done the hard bit and your brain has been through a lot for a delicate thing. Give it and yourself time and don’t expect too much.... you’ve done great to be home so soon... feet up lots of R&R... cups of tea and sleep.. you’ve been under loads of pressure over the last few weeks/months... relax and try not to worry... be thinking about you... your sooo brave😌👍🏻🤗xx

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Thank you. Glad I’m on this sight. As I don’t feel I’ve the support at home. Don’t think the hubby understands this at all. Shame really disappointed. But I guess for him I just look a bit rough and not hurt as he can’t see wounds. X

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Aww don’t think men really get it sometimes .. it’s not their fault but they think your fixed now! Job done.. it’s not always that simple. My hubby has travelled all of this journey with me from the start but is getting fed up now and says that ‘yep this is it getting sorted in Liverpool.. !’ Mine’s been going on 4 years and he’s as sick of it as me.

This journey is defo a strange one for us and as we said it’s an isolating feeling... unique. Please don’t worry.. it will be fine and just know you are brave and there are lots of people who are travelling along the pathway who you can turn to while you are healing. Keep telling him that you’ve had major surgery even though you’ve got no scars😌😬xxx

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Hiya Peppy

How are you today hope your feeling a bit more like you😌🤗 did you have an ok night? It’s just time to heal now👌🏻Be good to yourself xx

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Hi. Had good sleep. Feeling very weak/tired. Going to doctors soon as my throat is extremely sore and have very bad tast.ed head is fine apart from small headaches. Feels like I’m not making sense when talking. Just sleeping. But the truth is it’s not as bad as I thought. Head wise. We all recover diiferant I’m just weak tired mostly. But will speak to u soon. I just can’t be bothered with myself right now. Xx

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Ah just take one step at a time it’s a big thing you’ve had done... Doctors will sort you. You’ll be rough for a while but plenty of rest and take things your pace chill!

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Well done , you have done so well I was out of it for days ( mine ruptured tho ) I hope it all goes well x

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I don’t feel like I’m doing well feel like I’m moaning to much.

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I'm glad your home I'll be having the same procedure soon, get well soon

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Thank you. Well even though I’m feeling strange and sore. Alls I can say is It’s not as bad as I thought it would be!! Good luck for your operation

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Hiya Peppy

Just wondering how your doing. I’m busy with a few things this week but got some coping strategies in place including counselling as the stress is really making my feel rough now the op is looming.. also I called Headway and they kindly put me in touch with a lady who has agreed to meet me at the hospital for a chat which is so kind.

Aww let me know how your getting on and do hope your improving

Regards Andrea

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Glad your getting help with your stress. Fingers crossed for you it helps you. For me the pain has reduced finally but still not sleeping and still off work. I’ve been thinking of you. But I’ve sort of been with drawn you could say. Felling I just don’t have the energy emotionally Feelings I don’t like at all. Xx

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Yes thanks I hope it all helps a bit also found someone who has been with my surgeon in Liverpool which put my mind at rest a bit more

I’m glad that the pain is easing for you but those emotions are strange. Did you feel like that before your op? Xx

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Hi Bobby16

When are you having your procedure? Or have you had it. Just got my date today for coiling it’s the 30 April I’m completely terrified😳

Regards Andrea

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Hope you are well into your recovery now and are feeling much better

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Yes thank u. I’m feeling a little stronger. Still have a light headache on one side of my head. And the odd sharp pain near my temple. Tired very easy but much much better

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Hi Peppy

How you getting along really hope your a lot better ... I’ve heard of even more people now with the neuralgic your suffering from and it’s quite common but nasty all the same.

I’m not doing well with stress stuff... cant sleep etc trying to get something for it but going to have to resort to tabs from the Doctor I think.

I’m suppose to be packing up as we’re moving house but keep looking at them and just back to Google (worst thing I know)

Think Im going to call my surgeons secretary and see if she can suggest anything ahhhhhh!! Know what you felt like😬😬🙄xx

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Hi Peppy

Couldn’t find your last reply! Hope you’ve had a nice Easter🐥we’ve been up to our eyes in pack up our house. As if there wasn’t enough stress going going!!! Our house move now clashes with my op so called the hospital to postpone till the end of May instead of April and guess what... not even on the system!!! I’d have been sitting here right up to the flipping date!!!

Hopefully will be seeing that lady in the hospital for a coffee next week so it’s a start!

Hope your doing ok and feeling a bit more like your old self xx

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Same to you. It’s just as well u contacted them to change date if u weren’t on the system. I feel for you having to wait even longer at least when you have it done you can recover in better weather and sit in your garden and yes it’s a start meeting the woman for coffee. Bet you just want it over and done with now. I’m still off work.... until end of April. I feel so nervous about going back. Feels like my whole personality has changed. Think it’s jyst my emotions have changed. I don’t no xx

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Just got to sit it out for a while longer but I do wonder about these hospitals sometimes or rather the admin side!

It must feel strange as it always does when you’ve been off for a while but as with a lot of things if your anxious (I too am very much like you!) the worry about it is very often worse than the event. I’m certain that there will be a good amount of gentle empathy for what you’ve been through. At the end of the day it was brain surgery not to mention the after effects.

I’m a terrible worrier but a lot of it stems from feeling of not in control and if I mentally grab the reins of situations and start steering, my mood lifts immediately. Go in there the proud and brave woman you are. You may be regarded in quite a different way than you anticipate!👍🏻🥊🤗

It’s just a thought.. that’s what I’m trying to do.. we haven’t got to this age without deserving to be in control of our direction of life👭enjoy the rest of your time of and be good to you ,xxx

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