cerebrospinal fluid leak : Here's an interview with... - Headway

Headway

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cerebrospinal fluid leak

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Here's an interview with a friend of mine who has a nasty form of aquired brain injury

bbc.com/news/uk-scotland-41...

A bad headache turned out to the fluid leaking from spinal chord into brain, with no known way to fix it.

3 Replies
cat3 profile image
cat3

It's terrifying that the leak can't be located, even with all the available technology ! What a dismal existance for your friend, yet he manages to smile.

Here's hoping for a breakthrough in detecting such problems so that living with this peculiar condition can become a thing of the past.

Hope you're doing OK Jonathan.

Cat x

in reply to cat3

Oh I'm just awesome thanks :)

lcd8 profile image
lcd8

Thanks for posting jriddell. I really hope your friend gets the relief he needs soon. I suffer from recurrent hydrocephalus caused by an AVM. But instead of a leak, I am unable to drain CSF from my brain. I have a VP Shunt now which relieves me of the symptoms. Before this and when it blocks I get really awful headaches too so can sympathise re those your friend describes.

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