Hello

[Julesgettingthere]

Any of my friends awake too ? ...

Jules

[miracleman]

No, but I am still up early, and on here now!

Just come on line, but was up at 6.30! Story of me post TBI afraid!

[Julesgettingthere in reply to miracleman]

Hi Miracleman, Jules here.

I think I must have had 4 nights sleep in the last four years - its a very lonely place isnt it.

Rough night and bit low today - just wanted to say hi really.

Its comforting to know you are not the only one.

Regards

Julesnot gettingveryfaragain ...

[Hidden in reply to Julesgettingthere]

Hi Jules

I struggle with sleeping too. Usually go to bed about 11pm but lucky if I am asleep before 2 am. Then I wake up repeatedly in the night! It is so frustrating

I hate the way we seem to make progress and then for some unknown reason we take a step back. I am really struggling with headaches and neck pain again, so bad I can only sit and support my own head for about 20 minutes, before pain gets so bad and neck muscles turn to jelly!

How are things with you?

[Julesgettingthere in reply to Hidden]

Hello again Hedgehog

Its interesting in that my sleep pattern is the same as yours.

I am in a cycle, I know i had a head injury and but struggling tp know if my cognitive problems are due to that or if the accident itself thinking about it and the lack of sleep is a major influence.

I am on walkergates waiting list, but its frustrating when all you want is for someone to tell you how to improve.

My pain is mainly in my back, like everyone, you get sort of used to the pain, or i have.

I am often around in the early hours drop me a post - it really cheers me up speaking to people like you.

I am so lost inside, I dont know who i am now.

Are you religious Hedgehog ? I have never given it much thought until the accident.

Thinking of having a look around the local church and see if I feel anything.

I cant agree more - we take 2 steps forward, doing very well for no reason but then crash to the ground for no reason the next day.

I am questioning what my life is now for and what the point is. Dont get me wrong, I am not about to jump off a bridge - just a bit hollow as a person now.

Regards

Jules

[Hidden in reply to Julesgettingthere]

Hi Jules

Sorry you are having such a tough time. I think a lot of us look for a reason to be here, or come to the conclusion that 'there must be more than just this life' at some point.

I am a believer, I'm not sure I would class myself as religious, I guess it depends how you define it. I do go to Church (when I have got the energy!) I also belong to a house group, we meet once a week, pray for each other's needs, and wider needs, Ebola crisis etc. We also study a passage from the bible and discuss it.

I find the house group a really good way of exploring things, sharing with others and learning from them. I hope that you find someone friendly at the church, it can be a bit daunting at first if you go alone. But there is usually some sweet person (often a little old lady ) who will take you under their wing so to speak.

There is a popular course for people who wish to explore Christianity, it is called the Alpha course, it covers really deep questions as well as the basics.

Hope that things improve for you xx

[Julesgettingthere in reply to Hidden]

That has really helped me hedgehog - thank you.

Jules