If you have read my posts before, Jack and Sophie are brother and sister who were involved in a serious car accident 18 months ago, and both now have brain injuries, different brain injuries. After a rough week, I feel I can off load on here. I attended a Children's Brain Injury conference last week, and found it bit of a reality shock. It made me realize what our future is probably going to hold, things you think at the time, only happen to other people. The reality of support these 2 children will possibly need for the rest of their lives was the hardest part to get my head round and finding it hard to accept. Will they ever live independently, have a occupation, have relationships, get married and have their own family are questions nobody can answer. We are working hard to get Jack to secondary school in September, another massive hurdle to get over. Sophie has another year at primary school, but really struggling, and both children being refused statements is really frustrating, and shows again that the system dosnt really understand brain injury. We are going to tribunal with Durham County. I feel everything is a fight, to get what these 2 special children need, but we keep fighting, and handle things one day at a time. We had a special assembly at school today, Jack was to embarrassed to play his clarinet and guitar in front of everyone, which wouldn't of bothered him once. Sophie was disappointed she didn't win the Easter Egg Competition. But a very proud and emotional moment when Jack was the only pupil in school to receive an excellence award for his hard work and preparing for his SAT's. I was the happiest mam in that room, and had lots of tears today. So proud xx
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.