when I first had my brain injury; I was given a booklet on brain injuries and sent off to fend for myself; the booklet was of no use as I was having visual disturbances so could not see anything through the blobs of bright lights and zig zags. I did not realise that a brain injury would have such a devastating effect on my life, as the main bread winner to my husband who is aged 77, and a young autistic son, it was life changing for us all when I lost my well paid job, it was a blow to my confidence and self worth, and the anxiety of thinking about the future, made the symptoms worse.
A few years later, and I still have not received any help or support from any area but life has been, and continues to be a battle as I have problems with my cognitive abilities, short term memory, re-learning things is a no, no, and I suffer with depression and angry outbursts. I thought I had finally found some answers when I found out about headway, and the articles did explain a great deal, and described me completely, however, the meetings are too far away for me to get to so I am still isolated. The DVLA took my licence away as my neurologist said I was brain blind which means that I do not see items or people that I do not expect to be somewhere so getting around is difficult as is recognising people, places and things. Despite the DVLA recognising that I am 'blind' as they put it, I cannot be registered as blind as I do not fit the criteria so it is all confusing that some feel that I can see whilst others say I cant. I cannot go out on my own, cook or do daily things however, as I can get dressed using strategies my family have gradually introduced, social services do not consider that I need help and support. There should be a service that deals with brain injuries, and can bring all the agencies and regulations together. I worry about how many other people like me are out there and are not getting any help and support. My life is like a shadow of what it was and if it was not for my son, I would not feel it valuable enough to continue with as all I do is sit waiting for him to come home for school.